Abstracts
The purpose of this paper was to identify the common contents between São Paulo's Health Survey Questionnaire (Physical Disability and Emotional Health Blocks) and the International Classification of Functionality, Disability, and Health. The first stage of the research consisted of the search for the modules of São Paulo's Health Survey, which addressed the issue of disability, and the passages about this theme were highlighted and inserted into a new file. In the second stage, the significant contents were extracted. In the last one, these contents were codified to the codes of the International Classification of Functionality, Disability, and Health by two independent researchers. For the descriptive statistical analysis, crude numbers, percentages, and simple frequencies were used. The degree of agreement between the two professionals was calculated using Kappa's coefficient and the confidence interval. The most common domains were those about functions and body structures and about activities and participation, in which the domain of environmental factors presented a lower frequency of approach.
Health surveys; International Classification of Functionality, Disability and Health; Questionnaires
INTRODUCTION
Over the last decades, due to the population's epidemiologic and demographic changes, an interest on the development of indicators - focused not only on mortality, but also on morbidity - has been cultivated. Those would aim at the ability of people to develop their roles within society and at the evaluation of well-being and satisfaction concerning health conditions, encompassing not only the biological aspects of the diseases, but also their mental and social ones11. Costa AJ. Metodologia e indicadores para avaliação da capacidade funcional: Análise preliminar do Suplemento Saúde da Pesquisa Nacional por Amostra de Domicílios - PNAD, Brasil, 2003. Cienc Saúde Coletiva 2006; 11(4): 927-40.. The information about what happens after the diagnosis of a disease over time, especially concerning chronic diseases and accidents, are increasingly important in the healthcare area. Having the knowledge about the causes of death and diseases which occur more often is no longer enough for the planning of health action22. Farias N, Buchalla C. A Classificação Internacional de Funcionalidade, Incapacidade e Saúde da Organização Mundial de Saúde: Conceitos, usos e perspectivas. Rev Bras Epidemiol 2005; 8(2): 187-93..
Although the secondary data sources of the information systems are essential, these cannot meet the needs of health information. Thus, the population-based surveys show increasing importance, as they provide the knowledge on the health profile of the population and on the distribution of risk factors for the development of diseases33. Malta D, Leal M, Costa-Lima M, Neto O. Inquéritos Nacionais de Saúde: experiência acumulada e proposta para o inquérito de saúde brasileiro. Rev Bras Epidemiol 2008; 11 Suppl 1: 159-67., as well as the ones which influence people's health condition status.
Measures of functional capacity and mobility are often used in population surveys because of its social relevance and ease of interpretation, offering a convenient way to compare the impact of the different diseases, in different populations, at various time periods44. Raty S, Aroma A, Koponen P. Measurement of physical functioning in comprehensive national health surveys - ICF as a framework. National Public Health Institute, 2003. 171 p. Disponível em: http://www.euhsid.org/docs/HISHESphase2_sub4.pdf. (Acessado em 5 de janeiro de 2011).
Disponível em: http... . The measures can also be used as predictors or prognosis indicators of the ability to live independently and of the need for personal care assistance55. Reuben DB, Sui AL. An objective measure of physical function of elderly outpatients. The Physical Performance Test. J Am Geriatr Soc 1990; 38(10): 1105-12.. Although there is a growing inclusion of parameters about disabling processes in population surveys, there is no consensus on what kinds of information should be included, making the comparison of data between the surveys rather difficult44. Raty S, Aroma A, Koponen P. Measurement of physical functioning in comprehensive national health surveys - ICF as a framework. National Public Health Institute, 2003. 171 p. Disponível em: http://www.euhsid.org/docs/HISHESphase2_sub4.pdf. (Acessado em 5 de janeiro de 2011).
Disponível em: http... , turning this disagreement into a theme of discussion for the scientific literature66. Altman BM, Gulley SP. Convergence and divergence: differences in disability prevalence estimates in the United States and Canada based on four health survey instruments. Soc Sci Med 2009; 69(4): 543-52..
In an attempt to reduce the gap between the available tools to measure the mortality and morbidity, and in order to develop a universal language for the area, in 2001, the World Health Organization (WHO) has approved the International Classification of Functionality, Disability and Health (ICF). According to this, the functionality (standard ICF term), used in a positive aspect, encompasses the functions and structures of the body, the activity and the participation. On the other hand, the disability would be the negative term of the process, resulting from the interaction between the individual's disability, the limitations of their activities and the restrictions in their participation, along with environmental factors (barriers or facilitators of health conditions)77. Organização Panamericana de Saúde. Organização Mundial da Saúde. CIF: Classificação Internacional de Funcionalidade, Incapacidade e Saúde. São Paulo: EDUSP; 2003., as can be seen in Chart 1.
Definitions of International Classification of Functionality, Disability, and Health (adapted from PAHO/OMS7).
The ICF was proposed aiming to serve as the ideal tool to guide the understanding of results measuring, based on the patients' answers88. Cesar CLG, Carandina L, Alves MCGP, Barros MBA, Goldbaum M. Saúde e condição de vida em São Paulo: inquérito multicêntrico de saúde no Estado de São Paulo. São Paulo: Faculdade de Saúde Pública da USP; 2005.. The classification provides a wide and universally accepted perspective, in order to achieve and describe the phenomena which follow the diagnosis of different kinds of health conditions99. Herrmann KH, Kirchberger I, Biering-Sørensen F, Cieza A. Differences in functioning of individuals with tetraplegia and paraplegia according to the International Classification of Functioning, Disability and Health (ICF). Spinal Cord 2011; 49(4): 534-43.. There is the possibility of using the ICF model in the multidimensional and in the population-based study's evaluations, related to the disability's processes, thus having a wider and more comprehensive view of what aspects can be affected by individuals and populations1010. Virués-Ortega J, de Pedro-Cuesta J, Seijo-Martínez M, Saz P, Sánchez-Sánchez F, Rojo-Pérez, et al. Prevalence of disability in a composite >75 year-old population in Spain: a screening survey based on the International Classification of Functioning. BMC Public Health 2011; 23(11): 176-85.. There also is a growing need for the use and exploration of classification in practical use in epidemiological researches44. Raty S, Aroma A, Koponen P. Measurement of physical functioning in comprehensive national health surveys - ICF as a framework. National Public Health Institute, 2003. 171 p. Disponível em: http://www.euhsid.org/docs/HISHESphase2_sub4.pdf. (Acessado em 5 de janeiro de 2011).
Disponível em: http... .
The identification of the common contents between the instruments for data collection from population-based surveys, and the ICF, can be a methodologically interesting activity to health research, as it highlights the way in which health surveys collect the information regarding disability. Studies with similar purposes have been conducted in several countries, using a methodology similar to the one used in this article1111. Alghwiri AA, Marchetti GF, Whitney SL. Content comparison of self-report measures used in vestibular rehabilitation based on the international classification of functioning, disability and health. Phys Ther 2011; 91(3): 346-57.
12. Gradinger F, Glässel A, Bentley A, Stucki A. Content comparison of 115 health status measures in sleep medicine using the International Classification of Functioning, Disability and Health (ICF) as a reference. Sleep Med Rev 2011; 15(1): 33-40.
13. Prodinger B, Cieza A, Williams DA, Mease P, Boonen A, Kerschan-Schindl K, et al. Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health. Arthritis Rheum 2008; 59(5): 650-8.
14. Rat AC, Guillemin F, Pouchot J. Mapping the osteoarthritis knee and hip quality of life (OAKHQOL) instrument to the international classification of functioning, disability and health and comparison to five health status instruments used in osteoarthritis. Rheumatol 2008; 47(11): 1719-25.
15. Sigl T, Cieza A, Brockow T, Chatterji S, Kostanjsek N, Stucki G. Content comparison of low back pain-specific measures based on the International Classification of Functioning, Disability and Health (ICF). Clin J Pain 2006; 22(2): 147-53.
16. Stamm T, Geyh S, Cieza A, Machold K, Kollerits B, Kloppenburg M, et al. Measuring functioning in patients with hand osteoarthritis--content comparison of questionnaires based on the International Classification of Functioning, Disability and Health (ICF). Rheumatol 2006; 45(12): 1534-41. - 1717. Stucki A, Stucki G, Cieza A, Schuurmans MM, Kostanjsek N, Ruof J. Content comparison of health-related quality of life instruments for COPD. Respir Med 2007; 101(6): 1113-22.. In Brazil, the method has been used in various research areas related to health or functional recovery1818. Cardoso AA, Magalhães LC, Lacerda TTB, Andrade PMO. Relação entre a Avaliação da Coordenação e Destreza Motora (Acoordem) e a Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF). Fisioter Mov 2012; 25(1): 31-45.
19. Faria CDCM, Silva SM, Corrêa JCF, Laurentino GEC, Teixeira-Salmela LF. Identificação das categorias de participação da CIF em instrumentos de qualidade de vida utilizados em indivíduos acometidos pelo acidente vascular encefálico. Rev Panam Salud Publica 2012; 31(4): 338-44.
20. Polese JC, Nascimento LR, Faria CDCM, Laurentino GEC, Rodrigues-de-Paula F, Ada L, et al. Percepção de hemiplégicos crônicos sobre o uso de dispositivos auxiliares na marcha. Rev Panam Salud Publica 2011; 30(3): 204-8. - 2121. Andrade PMO. Avaliação das diretrizes curriculares conforme a perspectiva biopsicossocial da organização mundial de saúde. Avaliação (Campinas) 2010; 15(2): 121-30..
Besides that, such identification process may determine the way of approaching the components of the functionality-disability process by health survey. This way, it can be used as a tool in order to verify the approach to disability, according to the model proposed by the WHO. In other cases, the identification of the inquiries' concepts with the ICF can provide with a universal language for comparison between studies from different countries or locations, even with disparate instruments, since the process generates, as a product, codes of the ICF that may be similar. These information may be used for adjustment and orientation of the data collection, when necessary. In this sense, the objective of this study was to describe the common contents between the Health Survey of São Paulo (ISA) (Block E - Physical Disability and Block M - Emotional Health) and the ICF, presenting the ICF's chapters, to which the contents of the ISA questionnaire were related to.
METHODS
This study was conducted by identifying the common content between the ISA questionnaire and the ICF. The ISA in the state of São Paulo was conducted, in 2003, at some areas with a complex sampling, by clusters in two stages, the first one consisting of census sectors (70), and the second one consisting of households (2.249). The residents were randomly assigned to a sample of eight demographic areas (less than 1 year of age; 1 to 11 years of age; 12 to 19 years of age, male and female; 20 to 59 years of age, male and female; and 60 years of age or more, male and female). The size of the smaller group sample (less than one year of age) was of 300 children, defined based on the estimated proportion of 50% (p = 0.50), a 95% confidence interval (95%CI) (z = 1.96), a sampling error of seven percentage points (d = 0.07) and an outlining effect of 1.5 (deff = 1.5)2222. Segri NJ, Francisco PMSB, Alves MCGP, Azevedo Barros MB, Cesar CLG, Goldbaum M, et al. Práticas preventivas de detecção de câncer em mulheres: comparação das estimativas dos inquéritos de saúde (ISA - Capital) e vigilância de fatores de risco e proteção para doenças crônicas por inquérito telefônico (VIGITEL - São Paulo). Rev Bras Epidemiol 2011; 14(Suppl 1): 31-43..
Two municipalities from the country side of the state, Campinas and Botucatu, were studied. Besides that, other areas of analysis are located in the metropolitan region of the city of São Paulo, i.e. the cities of Taboão da Serra, Embu and Itapecerica da Serra, in addition to the health district of Butantã, located in the city of São Paulo.
The data collection instrument consisted of a questionnaire composed by the following blocks: Block A (general information about the family composition required to establish the first elements of living conditions); Block B (visiting control); Block C (morbidity for the period of 15 days and demand for health services and satisfaction, in Block C); Block D (diagnosis of chronic diseases, with two other subdivisions - D1 (hypertension) and D2 (diabetes)); Block E (physical disability and demand for health care of this problem in Block E); Block F (accidents or violence within the 12 months previous to the interview); Block G (use of dental care services in the last 12 months and health care services in the last 15 days previous to the interview, still describes the health services used); Block H (use of health care services for preventive screenings for diseases such as hypertension, breast, uterus and prostate cancer); Block I (data on the use of vaccines and also some questions about the knowledge of dengue transmission and control); Block J (consumption of medical drugs); Block K (hospitalizations in the 12 months previous to the interview and description of the services used); Block L (life style - physical activity, diet, smoking and alcohol consumption); Block M (Emotional Health); Block N (health self-assessment); Blocks O and Q (socioeconomic characterization of the interviewee (O) and the head of the family (Q)); Block P (family and household characteristics); Block R (monthly household expenses on health) and Block S (prenatal, childbirth and the first year of life for all children under one year of age)2323. Cesar CLG, Carandina L, Alves MCGP, Barros MBA, Goldbaum M. Saúde e condição de vida em São Paulo: inquérito multicêntrico de saúde no Estado de São Paulo. São Paulo: Faculdade de Saúde Pública da USP; 2005..
The research team coordinating the project consisted of professors and researchers from the Schools of Public Health (Faculdades de Saúde Pública - FSP) and Medicine, both part of the University of São Paulo (Universidade de São Paulo - USP); University of Campinas (Universidade Estadual de Campinas - Unicamp); Health Institute of the State of São Paulo (Instituto de Saúde do Estado de São Paulo) and the São Paulo State University (Universidade Estadual Paulista - UNESP). The initial survey was funded by the State Department of Health of São Paulo (Secretaria de Estado da Saúde de São Paulo) and by the São Paulo Research Foundation (Fundação de Amparo à Pesquisa do Estado de São Paulo - FAPESP)2323. Cesar CLG, Carandina L, Alves MCGP, Barros MBA, Goldbaum M. Saúde e condição de vida em São Paulo: inquérito multicêntrico de saúde no Estado de São Paulo. São Paulo: Faculdade de Saúde Pública da USP; 2005., providing the conduction of subsequent investigations in the cities of São Paulo and Campinas2424. Barros MBA, César CLG, Carandina L, Goldbaum M, organizadores. As dimensões da saúde: inquérito populacional em Campinas. São Paulo: Aderaldo & Rothschild Editores/Hucitec; 2008.. As a result of such studies, scientific articles were published2525. Carvalho WO, Cesar CLG, Carandina L, Barros MBA, Alves MCGP, Goldbaum M. Inquéritos de saúde e uso de serviços de saúde em três municípios da Grande São Paulo. Rev Pan Salud Pública 2008; 24(5): 314-23.
26. Castro SS, César CLG, Carandina L, Barros MBA, Alves MCGP, Goldbaum M. Deficiência visual, auditiva e física: prevalência e fatores associados em estudo de base populacional. Cad Saúde Pública 2008; 24(8): 1773-82.
27. Fisberg Regina M, Slater B, Barros RR, Lima FD, Cesar CLG, Carandina L, et al. Índice de Qualidade da Dieta: avaliação da adaptação e aplicabilidade. Rev Nutr 2004; 17(3): 301-8.
28. Fisberg RM, Morimoto JM, Slater B, Barros MB, Carandina L, Goldbaum M, et al. Dietary quality and associated factors among adults living in the state of São Paulo, Brazil. J Am Diet Assoc 2006; 106(12): 2067-72.
29. Francisco PMSB, Donalisio MR, Barros MBA, Cesar CLG, Carandina L, Goldbaum M. Medidas de associação em estudo transversal com delineamento complexo: razão de chances e razão de prevalência. Rev Bras Epidemiol 2008; 11(3): 347-55.
30. Francisco PMSB, Donalisio MR, Barros MBA, César CLG, Carandina L, Goldbaum M. Fatores associados à doença pulmonar em idosos. Rev Saúde Pública 2006; 40(3): 428-35.
31. Francisco PMSB, Donalisio MR, Barros MBA, César CLG, Carandina L, Goldbaum M. Fatores associados à vacinação contra a influenza em idosos. Rev Panam Salud Publica 2006; 19(4): 259-64.
32. Zaitune MPA, Barros MBA, César CLG, Carandina L, Goldbaum M. Fatores associados ao sedentarismo no lazer em idosos, Campinas, São Paulo, Brasil. Cad Saúde Pública 2007; 23(6): 1329-38. - 3333. Zaitune MPA, Barros MBA, César CLG, Carandina L, Goldbaum M. Hipertensão arterial em idosos: prevalência, fatores associados e práticas de controle no Município de Campinas, São Paulo, Brasil. Cad Saúde Pública 2006; 22(2): 285-94.. Furthermore, it is noteworthy that the ISA is a result of a collective effort between academies - represented by the Universities involved - and public health management, as evidenced by the financial support of the Secretaria de Estado da Saúde de São Paulo.
The present research was conducted in three stages, often used in similar studies1111. Alghwiri AA, Marchetti GF, Whitney SL. Content comparison of self-report measures used in vestibular rehabilitation based on the international classification of functioning, disability and health. Phys Ther 2011; 91(3): 346-57.
12. Gradinger F, Glässel A, Bentley A, Stucki A. Content comparison of 115 health status measures in sleep medicine using the International Classification of Functioning, Disability and Health (ICF) as a reference. Sleep Med Rev 2011; 15(1): 33-40.
13. Prodinger B, Cieza A, Williams DA, Mease P, Boonen A, Kerschan-Schindl K, et al. Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health. Arthritis Rheum 2008; 59(5): 650-8.
14. Rat AC, Guillemin F, Pouchot J. Mapping the osteoarthritis knee and hip quality of life (OAKHQOL) instrument to the international classification of functioning, disability and health and comparison to five health status instruments used in osteoarthritis. Rheumatol 2008; 47(11): 1719-25.
15. Sigl T, Cieza A, Brockow T, Chatterji S, Kostanjsek N, Stucki G. Content comparison of low back pain-specific measures based on the International Classification of Functioning, Disability and Health (ICF). Clin J Pain 2006; 22(2): 147-53.
16. Stamm T, Geyh S, Cieza A, Machold K, Kollerits B, Kloppenburg M, et al. Measuring functioning in patients with hand osteoarthritis--content comparison of questionnaires based on the International Classification of Functioning, Disability and Health (ICF). Rheumatol 2006; 45(12): 1534-41. - 1717. Stucki A, Stucki G, Cieza A, Schuurmans MM, Kostanjsek N, Ruof J. Content comparison of health-related quality of life instruments for COPD. Respir Med 2007; 101(6): 1113-22.. The first of them consisted in the search of the ISA modules that addressed the issue of disability, which were then selected, and the questions relating to disability were highlighted from the total instrument and inserted into a new file. Then, in a second stage, the significant content were extracted from the sections and placed into evidence for the next stage of the research. In the last stage, there was the codification of the highlighted contents for the ICF codes. This process was executed by two independent researchers, with knowledge of the ICF, of its taxonomy and experience, and of the training in the process of codification, according to the proposed and published rules3434. Cieza A, Geyh S, Chatterj IS, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update bases on lessons learned. J Rehab Med 2005; 37(4): 212-8.. At the end of the work of the coders, a comparison between the results and the discordances were settled by a consensus between the two parts. The rules for codification are shown inCharts 2 and 3.
Content codification rules of the International Classification of Functionality, Disability, and Health codes34.
Measures such as pure numbers, percentages and simple frequencies were used for descriptive statistical analysis. The degree of agreement between the produced codifications by both professionals who performed the binding process was calculated by the Kappa coefficient and the confidence interval. The software used was the SPSS, version 7.0.
RESULTS
Of the 56 questions contained in the selected ISA (Blocks E and M), significant contents was extracted from 71 of them. From these, 64.8% would refer to the first and 35.2%, to the second block. The results are shown in Figure 1.
Number of significant contents identified in the ISA and its distributions among the International Classification of Functionality, Disability, and Health components.
The overall percentage concordance was 53.5%, being 60.1% for Block E and 40% for Block M. The Kappa coefficient found for the overall concordance was 0.48 (95%CI 0.34 - 0.60); 0.58 (95%CI 0.41 - 0.71) for Block E and 0.44 (95%CI 0.32 - 0.58) for Block M.
For Block E, from the 46 contents, extracted and transformed into ICF categories, most of them would refer to activities and participation (32.6%), followed by bodily functions (19.5%). Only 8.7% of the contents would relate to environmental factors and 2.2% to body structures. In addition to that, 19.5% of the contents could not be precisely defined with the ICF categories (8.7% referring to environmental factors, 6.5% to personal and 4.3% to activities and participation) and 17.4% of the significant contents were not covered by the classification domains. Regarding Block M, 60% of the 25 contents refer to bodily functions, 12% to activities and participation. For the contents which were not determined into any specific ICF category, the frequency was 24% (16% for environmental factors and 8% for activities and participation). Only one of the contents (4%) was not covered by the classification.
After analyzing both blocks, the results were as follows: 33.8% of the content refers to bodily functions, 25.3% to activities and participation, 5.6% to environmental factors, and only 1.4% to body structures. It was also observed that 21% of the contents were not properly connected to the ICF categories (9.8% of them are personal factors and 11.2% are environmental factors, activities and participation). These contents had their domains identified. However, a more accurate correspondence to the codes of second or third levels was not possible, due to their nonspecific nature. The frequency of contents which were not covered by the classification - such as time, birth, useful role in life and disease, among others - was 12.7%.
DISCUSSION
Cross-sectional population-based studies have been widely used to determine prevalence and for diagnosis in health for both national3535. Barata RB, Ribeiro MCSA, Cassanti AC, Grupo do Projeto Vulnerabilidade Social no Centro de São Paulo. Social vulnerability and health status: a household survey in the central area of a Brazilian metropolis. Cad Saúde Pública 2011; 27(Suppl 2): s164-75.
36. Barata RB. Inquérito Nacional de Saúde: uma necessidade? Cienc Saúde Coletiva 2006; 11(4): 870-1.
37. Esteves FM, Silva-Vergara ML, Carvalho ACFB. Inquérito epidemiológico sobre teníase em população do programa saúde da família no município de Uberaba, MG. Rev Soc Bras Med Trop 2005; 38(6): 530-1.
38. Lima-Costa MF. Estilos de vida e uso de serviços preventivos de saúde entre adultos filiados ou não a plano privado de saúde (inquérito de saúde de Belo Horizonte). Cienc Saúde Coletiva 2004; 9(4): 857-64. - 3939. Ribeiro MTF, Rosa MAC, Lima RMN, Vargas AMD, Haddad JPA, Ferreira e Ferreira E. Edentulism and shortened dental arch in Brazilian elderly from the National Survey of Oral Health 2003. Rev Saúde Pública 2011; 45(5): 817-23. and international levels4040. Bollegala D, Perruccio AV, Badley EM. Combined impact of concomitant arthritis and back problems on health status: Results from a nationally representative health survey. Arthritis Care Res 2011; 63(11): 1584-91.
41. Khandor E, Mason K, Chambers C, Rossiter K, Cowan L, Hwang SW. Access to primary health care among homeless adults in Toronto, Canada: results from the Street Health survey. Open Med 2011; 5(2): e94-103. - 4242. Ryan BL, Stewart M, Campbell MK, Koval J, Thind A. Understanding adolescent and young adult use of family physician services: a cross-sectional analysis of the Canadian Community Health Survey. BMC Fam Pract 2011; 12(1): 118.. In the case of the surveys that address the issue of disability, the incorporation of the concepts advocated by the WHO, through the ICF, is crucial for the estimation of the prevalence of disabilities not to be impaired, and that the results are not biased.
The discussion about the correct survey of the prevalence of people with disabilities in population studies has been targeted by the scientific community4343. Altman BM. A reply to: the myth and reality of disability prevalence: measuring disability for research and service. Disabil Health J 2011; 4(3): 198.
44. McDermott S, Turk MA. A reply to reply to: the myth and reality of disability prevalence: measuring disability for research and service. Disabil Health J 2011; 4(3): 198-9. - 4545. McDermott S, Turk MA. The myth and reality of disability prevalence: measuring disability for research and service. Disabil Health J 2011; 4(1): 1-5.. In this sense, the World Report on Disability also presents varying prevalence according to location, level of development and other variables4646. World Health Organization. Word Report on Disability. Switzerland: WHO - World Health Organization; 2011.. The improvement of instruments for data collection proves to be essential in the process of determining the prevalence of disabilities among the studied population groups, once that, in some cases, errors and inconsistencies can be generated, due to the inadequacy of the data collection instrument4747. Ball AE, Russell EM, Seymour DG, Primrose WR, Garratt AM. Problems in using health survey questionnaires in older patients with physical disabilities. Can proxies be used to complete the SF-36?. Gerontol 2001; 47(6): 334-40..
Considering these statements, the discussion of the domains or facets of functionality/disability, covered by health surveys, will contribute towards the improving the data collection instruments, and as a result, improving the quality of the data collected by these studies. In this sense, the detection of the domains used in the preparation of the questionnaires will help incorporating into these instruments the domains which were not included, making the proposal for disability's multiple causes to be satisfactorily addressed. The ICF, in turn, provides the theoretical background for better comprehension of the concepts involved in the subjects' functionality/disability, which are already being incorporated into health surveys4848. Madans JH, Loeb ME, Altman BM. Measuring disability and monitoring the UN Convention on the Rights of Persons with Disabilities: the work of the Washington Group on Disability Statistics. BMC Public Health 2011; 11(Suppl 4): S4. , 4949. Mulhorn KA, Threats TT. Speech, hearing, and communication across five national disability surveys: results of a DISTAB study using the ICF to compare prevalence patterns. Int J Speech Lang Pathol 2008; 10: 61-71..
In addition to bringing new concepts about the functionality/disability, the ICF has also been proposed with the intention of being an instrument for usage in areas such as national and international reports5050. Ewert T. Report of the 8th national ICF user conference held on March 10, 2010 in Leipzig. Rehabilitation (Stuttg) 2010; 49(4): 256-8. on disabilities; scientific health researches5151. Grisbrook TL, Stearne SM, Reid SL, Wood FM, Rea SM, Elliott CM. Demonstration of the use of the ICF framework in detailing complex functional deficits after major burn. Burns 2012; 38(1): 32-43. , 5252. Harty M, Griesel M, van der Merwe A. The ICF as a common language for rehabilitation goal-setting: comparing client and professional priorities. Health Qual Life Outcomes 2011; 9: 87.; clinical5353. Tempest S, Harries P, Kilbride C, De Souza L. To adopt is to adapt: the process of implementing the ICF with an acute stroke multidisciplinary team in England. Disabil Rehabil 2012 (no prelo). , 5454. Dalen HE, Nyquist A, Saebu M, Roe C, Bautz-Holter E. Implementation of ICF in goal setting in rehabilitation of children with chronic disabilities at Beitostolen Healthsports Centre. Disabil Rehabil 2012 (no prelo). and epidemiological usage5555. Oberhauser C, Escorpizo R, Boonen A, Stucki G, Cieza A. A statistical validation of the Brief ICF Core Set for osteoarthritis based on a large international sample of patients with osteoarthritis. Arthritis Care Res (Hoboken) 2012 (no prelo). , 5656. Dale C, Prieto-Merino D, Kuper H, Adamson J, Bowling A, Ebrahim S, et al. Modelling the association of disability according to the WHO International Classification of Functioning, Disability and Health (ICF) with mortality in the British Women's Heart and Health Study. J Epidemiol Community Health 2012; 66(2): 170-5., and in the area of social politics, among others such as the educational field5757. Hollenweger J. Development of an ICF-based eligibility procedure for education in Switzerland. BMC Public Health 2011; 11(Suppl 4): S7..
In a recent systematic review of the literature using the methodology of connecting instruments to the ICF, the authors have pointed out that this kind of work is a useful way to apply the classification of scientific researches. They have stressed that 100 articles have been published in 58 scientific journals, having been distributed over 50 different acting fields. It was also observed that the tool has demonstrated a great ability of usage in the description and comparison of the information on the quantitative and qualitative data related to the processes of disabilities5858. Fayed N, Cieza A, Bickenbach JE. Linking health and health-related information to the ICF: a systematic review of the literature from 2001 to 2008. Disab Rehab 2011; 33(21-22): 1941-51..
The results of this study indicate a higher frequency of categories relating to bodily functions. This fact shows a higher affinity of the deficiency of the ISA-SP approach to the biomedical model, present in most quantitative health studies. This is a reductionist approach5959. Alonso Y. The biopsychosocial model in medical research: the evolution of the health concept over the last two decades. Patient Educ Couns 2004; 53(2): 239-44., reflecting the higher education and health research systems, deeply influenced by Cartesianism, which cares for the attention to the individual, to the disease and to the affected organs and bodily functions6060. Eaton JS Jr. The biopsychosocial model in education: discussion. Psychosom Med 1980; 42(Suppl 1): 131-3. , 6161. Engel GL. The biopsychosocial model and the education of health professionals. Gen Hosp Psychiatry 1979; 1(2): 156-65.. The biopsychosocial model, as opposed to the biomedical one, even having been proposed in the decade of 1970, continues with little participation in the health research area5959. Alonso Y. The biopsychosocial model in medical research: the evolution of the health concept over the last two decades. Patient Educ Couns 2004; 53(2): 239-44.. The approach proposed by the ICF seeks to break this paradigm, by providing a theoretical framework with components other than the physical or biological ones. The WHO suggests that other factors, such as psychological and social ones, have as much influence on the functionality/disability as the biological ones do6262. Di Nubila HBV, Buchalla CM. O papel das Classificações da OMS - CID e CIF nas definições de deficiência e incapacidade. Rev Bras Epidemiol 2008; 11(2): 324-35., enriching their approach as the ways of visualizing the matter broadens.
It was also observed, by the results presented, that the environmental factors are barely addressed in the instrument. The environment is a component of the explanatory model of the disabling process proposed by the WHO and it has direct relation to the process and to the other components involved3434. Cieza A, Geyh S, Chatterj IS, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update bases on lessons learned. J Rehab Med 2005; 37(4): 212-8. , 6363. Balfour JL, Kaplan GA. Neighborhood environment and loss of physical function in older adults: evidence from the Alameda County Study. Am J Epidemiol 2002; 155(6): 507-15.
64. Keysor JJ, Jette AM, LaValley MP, Lewis CE, Torner JC, Nevitt MC, Felson DT; Multicenter Osteoarthritis (MOST) group. Community environmental factors are associated with disability in older adults with functional limitations: the MOST study. J Gerontol A Biol Sci Med Sci 2010; 65(4): 393-9. - 6565. Tomey KM, Sowers MR. Assessment of physical functioning: a conceptual model encompassing environmental factors and individual compensation strategies. Phys Ther 2009; 89(7): 705-14.. It is important to highlight that, at the time environment is not considered in the creation of the collection instrument, an important limiting or facilitating factor is excluded, increasing the chances of bias in the study. Future versions of the ISA and other population health surveys should incorporate the environment, in a more consistent way, as a builder and a component of the debilitating process, so as to approach such process in a more satisfactory manner, as recommended by the WHO.
Literature reports show the concordance between coders, measured by the Kappa coefficient, ranging from 0.67 (95%CI 0.56 - 0.78) to 1.001515. Sigl T, Cieza A, Brockow T, Chatterji S, Kostanjsek N, Stucki G. Content comparison of low back pain-specific measures based on the International Classification of Functioning, Disability and Health (ICF). Clin J Pain 2006; 22(2): 147-53.. It is noteworthy that the overall concordance of the raters of this study was 0.48 (95%CI 0.34 - 0.60), values that cannot be considered different from 0.67, due to the analysis of the presented confidence intervals. The low concordance for the emotional health block observed in this research could be explained by the difficulty of encoding the contents related to the Chapter of Mental Functions (b1) of the ICF, resulting from the degree of subjectiveness of these concepts. Furthermore, the reproducibility between raters in the content encoding process shows variations6666. van der Zee CH, Priesterbach AR, van der Dussen L, Kap A, Schepers VP, Visser-Meily JM, et al. Reproducibility of three self-report participation measures: The ICF Measure of Participation and Activities Screener, the Participation Scale, and the Utrecht Scale for Evaluation of Rehabilitation-Participation. J Rehabil Med 2010; 42(8): 752-7. , 6767. Campos TF, Rodrigues CA, Farias IM, Ribeiro TS, Melo LP. Comparison of instruments for sleep, cognition and function evaluation in stroke patients according to the international classification of functioning, disability and health (ICF). Rev Bras Fisioter 2012; 16(1): 23-9. or values below or above the ones found both here and in various other studies6868. Lemberg I, Kirchberger I, Stucki G, Cieza A. The ICF Core Set for stroke from the perspective of physicians: a worldwide validation study using the Delphi technique. Eur J Phys Rehabil Med 2010; 46(3): 377-88.
69. Starrost K, Geyh S, Trautwein A, Grunow J, Ceballos-Baumann A, Prosiegel M, et al. Interrater reliability of the extended ICF core set for stroke applied by physical therapists. Phys Ther 2008; 88(7): 841-51. - 7070. Becker S, Kirchberger I, Cieza A, Berghaus A, Harréus U, Reichel O, et al. Content validation of the Comprehensive ICF Core Set for Head and Neck Cancer (HNC): the perspective of psychologists. Psychooncology 2010; 19(6): 594-605., mentioned even in differentiated variations, according to the chapter of each of the ICF's domains7171. Grill E, Gloor-Juzi T, Huber EO, Stucki G. Assessment of functioning in the acute hospital: operationalisation and reliability testing of ICF categories relevant for physical therapists interventions. J Rehabil Med 2011; 43(2): 162-73.. The non-coverage of the content was reported in another research, which has analyzed eight scales and found non-coverage percentages raging from 0 to 30%1111. Alghwiri AA, Marchetti GF, Whitney SL. Content comparison of self-report measures used in vestibular rehabilitation based on the international classification of functioning, disability and health. Phys Ther 2011; 91(3): 346-57., among them all. The rate of the present survey was 12.7%, which is among the variation shown.
FINAL CONSIDERATIONS
The domains of body functions and structures and of activities and participation were the ones presenting the most codes in the study's questionnaire, as oppose to the environmental factors being the least addressed ones within the research. This research may contribute to the growth of health research in Brazil as it documents the ICF's - present or absent - in the health survey questionnaire, through transparent and reviewed methodologies. Thus, it is possible to create an empirical basis for future discussions on concepts which could, or should, fit into future health surveys. These discussions should not be limited only to the ISA questionnaire, but rather expanded to other studies with the same methodology, which seek for information regarding the occurrence of disability among the population.
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- 53Tempest S, Harries P, Kilbride C, De Souza L. To adopt is to adapt: the process of implementing the ICF with an acute stroke multidisciplinary team in England. Disabil Rehabil 2012 (no prelo).
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- Financial support: none
Publication Dates
- Publication in this collection
Mar 2014
History
- Received
21 May 2012 - Reviewed
09 July 2013 - Accepted
31 Oct 2012