Health care and black women: notes on coloniality, re-existence, and gains

Ana Cláudia Barbosa Roberta Gondim de Oliveira Roseane Maria Corrêa About the authors

Abstract

We reflect on Black women’s health as part of a narrative produced by the exercise of coloniality and the forces that contribute toward defining and imposing the place of a subaltern since the objectified and racialized body notion informs it. Black women are represented in the worst health indicators. We propose to look at collective health from the perspective of care as a political, social, and intersubjective technology, in whose encounters with the aesthetic-political body of Black women are traversed by unique exclusion experiences. Moving beyond suffering, we also address agency, resistance, and the construction of an agenda of struggle based on the Black people’s leading roles.

Key words:
Healthcare; Racism; Coloniality; Gender

Introduction - about coloniality, racism, and Black women

In this text, we speak from us, Black women, our place, the place of our mothers, our elders, our ancestors, who came from places about which we were not allowed to know for sure, whose concealment is only a part of the violence that founds us as objectified and silenced subjects in the forced diaspora. We also speak in unison with our sisters, Black in body, soul, and resistance, which is much more than resistance: it is the creation, reinvention, realization, and existence production in a daily life marked to be unfeasible since it is from a colonial place. We also want to start by discussing the exercise of power in coloniality, which systematically acts toward defining a subordinate place destined for us since the objectified and racialized notion of the body informs it.

We dialogue here with Quijano11 Quijano A. Colonialidad del poder y clasificacio´n social. In: Castro-Gómez S, Grosfoguel R, editores. El giro decolonial: reflexiones para una diversidad episte´mica ma´s allá del capitalismo global. Bogotá: Siglo del Hombre: Universidad Central, IESCO: Universidad Javeriana, Instituto Pensar; 2007. p. 93-126., for whom coloniality is defined as a global pattern of domination and exploitation within capitalist frameworks, which are based on the racial and ethnic classification of the world’s population as an accumulation strategy, a powerful concept in shaping the imposing sociability and subjectivation processes of a modern Eurocentric hegemony over the several life areas, especially the notion of the body as a locus of the exercise of domination.

Materially and discursively inscribed health practices are marked by differential workmanship in the care encounters depending on body reading. Although narrated as the result of “general protocols”, they are not neutral but situated, incarnated, and performed daily and differently, depending on the subject’s place in the socially, colonially, and racially demarcated plot. For this reason, we start our writing by criticizing coloniality’s domination project and the confrontation of “[...] forms of harassment that often undermine Black women’s ability to convey the certainty of talent and intellectual mastery”22 hooks b. Intelectuais negras. Estud Feministas 1995; 3(2):464-478.(p.472), underscoring the repercussions of colonial expropriation policies on Black-women-lives:

The colonial demarcation of the world implies the hierarchization and vulnerability of human lives, through the racialization of their bodies, toward their objectification and consequent exploitation [...]. The globalized coloniality’s socio-political plot [...] is expressed in the field of health not only in the modes of illness but also in its regulating bases and control and care strategies33 Oliveira RG. Vidas em exclusão e a reinvenção do cuidado. Rio de Janeiro: Ed. Fiocruz; 2021.(p.31).

The permanently updated world racialization is one of the European colonial enterprise’s important axes. It shapes political, economic, and social processes grounded on distinctions in diverse cleavages - of race, class, and gender - that benefit a specific population group to the detriment of others. The right of capitalist colonial expropriation is anchored in the assumption that the spaces of “gains” are human and legal voids, the so-called “non-being zones”44 Fanon F. Pele negra, máscaras brancas. Salvador: EdUFBA; 2008., underpinning the “[...] imposed racial/ethnic classification of the world population as the cornerstone of said [...] [capitalist] power[...]”55 Quijano A. Colonialidade do poder e classificação social. In: Santos BS, Meneses MP, organizadores. Epistemologias do sul. São Paulo: Cortez; 2010. p. 84-130..

The end of the international trade of Africans raised the price of enslaved people, and, in response, the elite and the State organized themselves to prolong the lives of captives so that they could be exploited for a longer period. Improved living conditions are not related to well-being but economic issues. Fertile women became a specific target due to the reproductive potential of slaves66 Florentino M. Em costas negras: uma história do tráfico de escravos entre a África e o Rio de Janeiro: séculos XVIII e XIX. São Paulo: Companhia das letras; 1997.. The Lei do Ventre Livre (Free Womb Act)77 Brasil. Lei nº 2.040, de 28 de setembro de 1871. Declara de condição livre os filhos de mulher escrava que nascerem desde a data desta lei, libertos os escravos da Nação e outros, e providencia sobre a criação e tratamento daquelles filhos menores e sobre a libertação annaul [sic] de escravos [Internet]. Coleção de Leis do Brasil; 1871 [acessado 2021 mar 12]. Disponível em: http://www.planalto.gov.br/ccivil_03/leis/lim/lim2040.htm.
http://www.planalto.gov.br/ccivil_03/lei...
directly attacks Black women, their reproductive capacity, and motherhood. The mother had no right over her offspring. It is a controversial law that grants freedom but provides the means for the enslaver to maintain possession of the individual until the age of 2177 Brasil. Lei nº 2.040, de 28 de setembro de 1871. Declara de condição livre os filhos de mulher escrava que nascerem desde a data desta lei, libertos os escravos da Nação e outros, e providencia sobre a criação e tratamento daquelles filhos menores e sobre a libertação annaul [sic] de escravos [Internet]. Coleção de Leis do Brasil; 1871 [acessado 2021 mar 12]. Disponível em: http://www.planalto.gov.br/ccivil_03/leis/lim/lim2040.htm.
http://www.planalto.gov.br/ccivil_03/lei...
.

The bases of coloniality hierarchize relationships at a global level from the North/South delimitation, supported by the triad of coloniality that operates the hierarchies: of power (capitalist concentrated in the North), the being (European white man as a universal reference), and knowledge (modern Eurocentric western science hegemony)55 Quijano A. Colonialidade do poder e classificação social. In: Santos BS, Meneses MP, organizadores. Epistemologias do sul. São Paulo: Cortez; 2010. p. 84-130.,88 Santos BS. Para além do pensamento abissal: das linhas globais a uma ecologia de saberes. In: Santos BS, Meneses MP, organizadores. Epistemologias do sul. São Paulo: Cortez; 2010. p. 31-83.. Lugones99 Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952. discusses the notion of the being’s coloniality based on the racialized production of the other and its relationship with the demarcation of gender, which would be valid only for the reading of universal (white) bodies and emptying this notion regarding others, “othered” and objectified. The man/woman binomial is voided of meaning when referring to the colonized, emphasizing that “unlike colonization, gender coloniality is still with us; it is what remains at the intersection of gender/class/race as central constructs of the world capitalist power system”99 Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952.(p.939).

The notion given to Black bodies, denied the same human status as whites, makes sense of the grammar of violence as a key to the operation of State devices, which is veiled and explicit violence, intersected in different spheres, including health, performing in access barriers; hierarchy and differentiation in care practices; non-prioritization in health programs and policies, among other vulnerable dynamics of living conditions.

As part of this plot, health policies and practices also reproduce the pattern of oppression, inequalities, and their naturalization. They produce different material and symbolic violence types, ranging from substandard living conditions to access barriers and differentiated forms of care.

Health has several expressions of this dynamic, and they must be part of the public health priority agenda. Black women are at greater risk of having prenatal care with fewer appointments than expected, less presence of a companion at delivery, and less access to labor analgesia1010 Leal MC, Gama SGN, Pereira APE, Pacheco VE, Carmo CN, Santos RV. A cor da dor: iniquidades raciais na atenção pré-natal e ao parto no Brasil. Cad Saude Publica 2017; 33(Supl. 1):1-17.. The risk of maternal death in Black women in Rio de Janeiro state is fivefold higher than in white women1111 Trajano AJB, Monteiro DLM, Tavares LS, Alves PAR, Gonçalves TAP. Mortalidade materna no Estado do Rio de Janeiro em 2000 e 2011. Rev Hospital Univ Pedro Ernesto 2015; 14(2):47-53.. Health indicators clearly show the problem, even if discussions about them are insufficient concerning the racial issue.

Likewise, the percentage of deaths from abortion in Black women is 45.21% compared to 17.81% in white women from January 2020 to February 20211212 Criola. Dossiê mulheres negras e justiça reprodutiva (2020/2021) [Internet]. Rio de Janeiro: Criola; 2021 [acessado 2021 jan 16]. Disponível em: https://drive.google.com/file/d/1eHGSM3DmKx1m9NbXEqrFBKRQQnZgeoBx/view.. Regarding maternal mortality, a sensitive indicator related to living conditions, access, and quality of prenatal care and childbirth, we can observe that the rate for Black women is almost 66% and just over 30%1212 Criola. Dossiê mulheres negras e justiça reprodutiva (2020/2021) [Internet]. Rio de Janeiro: Criola; 2021 [acessado 2021 jan 16]. Disponível em: https://drive.google.com/file/d/1eHGSM3DmKx1m9NbXEqrFBKRQQnZgeoBx/view. for white women in Brazil. Analyses regarding lethal violence against women in Brazil indicate a decrease over the last decade. However, they have been preserved and increased in racial terms, given that the decrease is much more significant regarding non-Black than Black women1313 Cerqueira D, Ferreira H, Bueno S, coordenadores. Atlas da violência 2021 [Internet]. São Paulo: FBSP; 2021 [acessado 2022 fev 27]. Disponível em: https://www.ipea.gov.br/atlasviolencia/arquivos/artigos/1375-atlasdaviolencia2021completo.pdf..

The records of the ethnicity/skin color item, and consequently the epidemiological studies, represent a huge gap in health discussions and are one of the countless expressions of structural and institutional racism1414 Batista LE, Monteiro RB, Medeiros RA. Iniquidades raciais e saúde: o ciclo da política de saúde da população negra. Saude Debate 2013; 37(99):681-690.,1515 Werneck J. Racismo institucional e saúde da população negra. Saude Soc 2016; 25(3):535-549.. The high percentage of uninformed records concerning ethnicity/skin color (27.39%) stands out, reinforcing the criticism that academics and activists dedicated to the discussion of racism make of the relationship between the non-appreciation of this information and the myth of racial democracy, which a significant part of Brazilian social thought reinforces1616 Nascimento A. O genocídio do negro brasileiro: processo de um racismo mascarado. Rio de Janeiro: Paz e Terra; 1978..

Coloniality regarding care makes explicit an absence in the history of Black women, where the construction of the Brazilian nation is marked by the perpetuated violations of these women’s rights. The intention of a nation desired by supporters of the eugenics movement did not leave room for Blacks and indigenous peoples. With the scientific support of the medical community, the movement launches proposals for sterilization, marriage control, selection, racial segregation, and generation of “healthy offspring”1717 Souza VS. A eugenia brasileira e suas conexões internacionais: uma análise a partir das controvérsias entre Renato Kehl e Edgard Roquette-Pinto, 1920-1930. Hist Cien Saude Manguinhos 2016; 23(Supl. 1):93-110.(p.107). The entire universe of eugenics is a producer of Black women’s suffering. Strategies designed for “improving the race” include inhibiting reproduction, affective isolation, separatism, and dehumanization.

Here we discuss health in its care dimension, looking at the relationship between racism, sexism, and classism, whose oppressive synergy converges, in the experience of Black women, in what Carneiro1818 Carneiro S. Escritos de uma vida. São Paulo: Pólen; 2019. designates as social asphyxia and the expressions in their health conditions, the care relationships, and the consequent urgency of an emancipatory reinvention. Inadmissible social asphyxiation, as it ontologically removes Black women from the place of being social and imprints a colonial-based care relationship1919 Passos RG. Mulheres negras, sofrimento e cuidado colonial. Em Pauta 2020; 18(45):116-129.. A set of issues that traverses us as Black women - individually, collectively, and historically marked - are addressed here as an agenda that needs to be built collectively, enter through the front door of academic spaces and health care, and elevate the social practice level: the social production of the racialized body and the issue of care, sewn together by the affectations of these dynamics, and addressing the issue of suffering, agency, resistance, and gains.

However, as Rivera Cusicanqui2020 Rivera Cusicanqui S. Ch'ixinakax utxiwa: una reflexión sobre prácticas y discursos descolonizadores. Buenos Aires: Tinta Limón; 2010. warns us, transposing into social practice implies imploding the legitimacy that agents of a thinking elite grant themselves in terms of powers, even those who say they are not aligned with colonial knowledge, but who often discursively appropriate the decolonial reflection as a strategy to maintain their role. These are conflicting statements since they are unrelated to the acts and the place they continue to hold in the world. The unveiling of this false ‘contradiction’, interested in preserving knowledge resources as an expression of power, can be transformed, as the author tells us, from a learning grounded on acts rather than words, and on social practices rather than conceptual frameworks, that, although important and necessary, are insufficient2020 Rivera Cusicanqui S. Ch'ixinakax utxiwa: una reflexión sobre prácticas y discursos descolonizadores. Buenos Aires: Tinta Limón; 2010..

Notes on Healthcare and Practices

We are in the 21st century, but the lack of care for Black women had long been denounced by Sojourner Truth2121 Truth S, Gilbert O. E eu não sou uma mulher?: a narrativa de Sojourner Truth. Rio de Janeiro: Imã Editorial; 2020. in the 19th century, when she questioned, in the Ohio Women’s Rights Convention, the category of a universal woman based on hegemonic feminism and neglecting racial guidelines since she did not receive the same “care” as the white woman2121 Truth S, Gilbert O. E eu não sou uma mulher?: a narrativa de Sojourner Truth. Rio de Janeiro: Imã Editorial; 2020.(p.27).

On the contrary, she had been treated like a commodity, enslaved, without any sign of a possible feminine fragility characterizing her. Since then, there has been no lack of reports of worse health outcomes, care inequalities and the possibility of self-care, and narratives about sexism, racism, and anti-Blackness, “a logic that results in ontological and social denial of the Black person”, affecting especially the Black woman2222 Vargas JHC. Racismo não dá conta: antinegritude, a dinâmica ontológica e social definidora da modernidade. Em Pauta 2020; 18(45):16-26.(p.18).

By coining the term anti-Blackness, Vargas2222 Vargas JHC. Racismo não dá conta: antinegritude, a dinâmica ontológica e social definidora da modernidade. Em Pauta 2020; 18(45):16-26. points to the singular and systematic exclusion that non-white people go through, that is, living under the sign of the devaluation of non-whiteness due to global white supremacy. Although the oppression experienced by these people stems from the same source (and, therefore, likely to be shared), it translates into different experiences, as they hold different positions of privilege or disadvantage. Thus, “the modern being (who) is defined in opposition to not being Black”2222 Vargas JHC. Racismo não dá conta: antinegritude, a dinâmica ontológica e social definidora da modernidade. Em Pauta 2020; 18(45):16-26.(p.18) finds in anti-Blackness the constitution and foundation of humanity, which excludes those who are considered non-persons, those who live non-existence. It is a perspective beyond racism, which defines the level of citizenship to be assigned to non-white people; it is about belonging or not to the human family, something that operates implicitly and unconsciously2222 Vargas JHC. Racismo não dá conta: antinegritude, a dinâmica ontológica e social definidora da modernidade. Em Pauta 2020; 18(45):16-26..

Suppose the Black presence in diasporic societies defines the non-Black being as a subject. In that case, when we think of Black women and the issue of gender as a historical-social construct, we must stretch the debate to the issue of Blackness and racism from an intersectional perspective that glimpses the differentiating grammar of the social interpretation of bodies, translated into various forms of oppression embodied in political operations and daily management of Black subjects. What place does society produce for Black women if the situation of Black women and men is that of a dominated caste facing the stereotypes created by the dominating caste in a white patriarchal system? Beauvoir2323 Beauvoir S. O segundo sexo. 5a ed. Rio de Janeiro: Nova Fronteira; 2019. wonders, “How the fact that we are women has affected our lives, what possibilities were offered to us, and which were denied to us?”. The author tells us that women were born on the “wrong side”; however, we inquire: on which side were Black, Afro-Latin American, and Caribbean women born?

Lugones99 Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952. tells us about the relationship between race and colonialism, unraveling a possible reflection on intersectionality in modernity. This intersection abandons man-woman and white-Black binarism to delve into another logic that is not categorized to understand the intersection of race, gender, and sexuality. Man-woman dichotomy was centered on the European-bourgeois-colonial-modern man and his supposed opposite, the European-bourgeois woman. The idea of a homogeneous and updated categorization refers to the main subject of this dichotomy; therefore, reference is made to white women when talking about women from a fallaciously universalist perspective, and talking about Black people refers to Black men. Thus, Black women are the Other of Black men and the Other of the white women2424 Kilomba G. Memórias da plantação: episódios de racismo cotidiano. Rio de Janeiro: Cobogó; 2019..

Spivak2525 Spivak GC. Pode o subalterno falar? Belo Horizonte: Ed. UFMG; 2010. draws attention to how women are included in subalternity to avoid a monolithic collectivity of “women” in the discourse on feminism: “If you are poor, Black, and female, you are involved in three ways”2525 Spivak GC. Pode o subalterno falar? Belo Horizonte: Ed. UFMG; 2010.(p.110). Such involvement does not presuppose a social place that puts them in the role of the oppressor; in contrast, white women and Black men can simultaneously act as oppressors or oppressed. Understanding subalternity is a sine qua non condition for transcending the colonial difference and advancing towards decolonization, as this perspective of subalternity will come as a response to the colonial difference and could restore the knowledge and place of subalterns within a new epistemology99 Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952..

When directing our gaze to Healthcare (with a capital letter because it is a proper noun in this conception and somewhat removed from the idea of treating, healing, or controlling), we see the Black population with less access to services, medication, and hospitalization; high syphilis and HIV rates in pregnant women, and maternal mortality2626 Brasil. Ministério da Saúde (MS). Secretaria de Gestão Estratégica e Participativa. Departamento de Apoio à Gestão Participativa e ao Controle Social. Política nacional de saúde integral da população negra: uma política para o SUS. 3a ed. Brasília: MS; 2017., thus explaining the care-racism interface2727 Xavier ACF, Estevam MSC, Ferreira BBM, Florentino DM, Barbosa MF, Barbosa AC. Ser preta(o) e ter Covid-19: reflexões sobre racismo e iniquidades em saúde. Saude Com Cien 2021; (1):220-229., which requires an accurate perspective on the provision of health practices vis-à-vis the legitimacy of the search for care, regardless of the body that will receive it2828 Barbosa AC. O centro-dia, seus idosos e a sua família: um olhar sobre as relações de cuidado [dissertação]. Rio de Janeiro: Fiocruz; 2008..

Under the SUS principles, health care should consider equity, comprehensiveness, and humanization. However, such devices are activated differently depending on who the care is directed to. How public health policies organize lines of care rarely debates or considers the racial issue; on the contrary, they are formulated based on the notion of a single, universal body, without envisaging the historicized production of the place of colonial-racial-based bodies and subjects, which reveals a given social dynamic and translates into social values and racist practices2929 Reinehr JPM. Silêncios e confrontos: a saúde da população negra em burocracias do Sistema Único de Saúde (SUS) [tese]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2019..

Care presupposes a complex dynamic that requires attention, shared responsibility, autonomy, and zeal, not just a technical procedure meeting a specific demand. Healthcare is heavily thematized in collective health outputs, with significant criticism, for example, about the technical apprehension of work processes. However, the racial issue is made invisible or devoid of meaning.

Therefore, one wonders what the meaning of an inclusive, comprehensive encounter of care that offers positive, respectful interaction should be, since the feeling of helplessness and neglect produce exacerbated suffering. Black women’s aesthetic-political bodies are marked by unique experiences of exclusion by a “stressful freedom”3030 Carneiro F. Nossos passos vêm de longe. In: Werneck J, Mendonça M, White EC, organizadores. O livro da saúde das mulheres negras: nossos passos vêm de longe. 2ª ed. Rio de Janeiro: Pallas, Criola; 2006. p. 22-41.. There is a need to consider the ethnicity/skin color of the historical body that enters the care environments! As Carneiro warns us, the struggle of Black women “[...] for access to dignified care [...] and respect for values and beliefs [...]”3030 Carneiro F. Nossos passos vêm de longe. In: Werneck J, Mendonça M, White EC, organizadores. O livro da saúde das mulheres negras: nossos passos vêm de longe. 2ª ed. Rio de Janeiro: Pallas, Criola; 2006. p. 22-41.(p.22) and against the structural and institutional racism that excludes and segregates, should guide clinical decision-making, albeit subliminally3030 Carneiro F. Nossos passos vêm de longe. In: Werneck J, Mendonça M, White EC, organizadores. O livro da saúde das mulheres negras: nossos passos vêm de longe. 2ª ed. Rio de Janeiro: Pallas, Criola; 2006. p. 22-41..

When claiming the “[...] production and analysis of data with racial disaggregation”, Borret et al.3131 Borret RH, Araujo DHS, Belford PS, Oliveira DOPS, Vieira RC, Teixeira DS. Reflexões para uma prática em saúde antirracista. Rev Bras Educ Med 2020; 44(Supl. 1):1-7. propose an anti-racist healthcare, “[...] toward racial equity”3131 Borret RH, Araujo DHS, Belford PS, Oliveira DOPS, Vieira RC, Teixeira DS. Reflexões para uma prática em saúde antirracista. Rev Bras Educ Med 2020; 44(Supl. 1):1-7.(p.3). It means taking for oneself, as a healthcare professional-caregiver, an ethical horizon that considers racial difference as relevant to the ways of living, getting sick, and dying, as part of moral and political subjectivity that inscribes Black women in a place beyond their biological self, to perceive a “historical, relational, and transcendent I/us”, since “[...] the body marks and recreates gestures and cultures that stem from afar [...]”3030 Carneiro F. Nossos passos vêm de longe. In: Werneck J, Mendonça M, White EC, organizadores. O livro da saúde das mulheres negras: nossos passos vêm de longe. 2ª ed. Rio de Janeiro: Pallas, Criola; 2006. p. 22-41.(p.24).

Questioning the approaches on the subject, we dialogue with Muñoz and Bertolozzi3232 Muñoz Sánchez AI, Bertolozzi MR. Pode o conceito de vulnerabilidade apoiar a construção do conhecimento em saúde coletiva? Cien Saude Colet 2007; 12(2):319-324.(p.322) when they consider that “[...] vulnerability must consider dimension related to individuals and their social place”, whose interpretation of the production of vulnerabilities dialogues with Ayres3333 Ayres JRCM [entrevistado por Castellanos MEP, Baptista TWF]. Entrevista com José Ricardo Ayres. Saude Soc 2018; 27(1):51-60. when he warns about recognizing vulnerability as a practical concept to think about intervention, proposing to discuss a notion of care that permeates the interaction between health professionals and the subjects targeted by their actions.

It would be a care to achieve technical success in the context they originate and justify such procedures and that effectively constitute subjects and not just the agents or objects of success3434 Ayres JRCM. Sujeito, intersubjetividade e práticas de saúde. Cien Saude Colet 2001; 6(1):63-72.,3535 Ayres JRCM. O cuidado, os modos de ser (do) humano e as práticas de saúde. Saude Soc 2004; 13(3):16-29.. Ayres3535 Ayres JRCM. O cuidado, os modos de ser (do) humano e as práticas de saúde. Saude Soc 2004; 13(3):16-29. also talks about the importance of building an identity between those who care and those cared for as fundamental for establishing the necessary bond for effective care. Given our colonial history of unequal production of subjects and bodies, we should underscore that, thinking about an “identity” construction in which both stakeholders in care encounters assume equal roles in the professional-user relationship, living a dialogical encounter, is unlikely to happen.

It reflects on the act of caring as an encounter in which the “reading” of the body of those who care and those who are cared for “arrives first” in the face of our process of sociability and subjectivation historically forged in colonial and racist bases, in which each of us, individually and collectively, ends up holding different places in the world that modulate care actions.

Kilomba2424 Kilomba G. Memórias da plantação: episódios de racismo cotidiano. Rio de Janeiro: Cobogó; 2019. narrates the white doctor’s impressions of the figure of the young Black patient who enters his office, placing her in the position of potential nanny of his children on vacation, which leaves him free to invite her to the role, the same reading, but symmetrically opposite, that white/male and female/Brazilian/doctors make of the place of Black/male and female/doctors who came to Brazil from Cuba, through the Mais Médicos (More Doctors) Program, when manifesting against their incorporation into the Family Health Strategy, arguing that they look like “maids”3636 Freire S. Xenofobia e racismo contra médicos cubanos [Internet]. Geledés; 2013 [acessado 2022 jan 15]. Disponível em: https://www.geledes.org.br/xenofobia-e-racismo-contra-medicos-cubanos/.
https://www.geledes.org.br/xenofobia-e-r...
(n. p.). If the girl-patient was white, would the invitation to be a nanny be part of the subjective and relational repertoire of the German doctor? If foreign female doctors were white, would they be considered to have the face of “domestic servants”? This “face” is read “in the implementation of care in its different levels, [and there are] people with whom we establish the most primary relationships and decide to accept or reject, to dominate or cooperate with”2828 Barbosa AC. O centro-dia, seus idosos e a sua família: um olhar sobre as relações de cuidado [dissertação]. Rio de Janeiro: Fiocruz; 2008.(p.38).

Epidemiological knowledge that guides another type of care will only be possible through the formal identification of Blacks and browns. Resisting the collection of the ethnicity-skin color item and keeping silent about our racial dynamics are ways of embargoing and interdicting the discussion, as proposed by supporters of the new color-blind racism, which advocates silencing around “race-related” issues: “not see, speak, or act regarding race”. That way, nobody sounds racist, and nothing seems racist”2929 Reinehr JPM. Silêncios e confrontos: a saúde da população negra em burocracias do Sistema Único de Saúde (SUS) [tese]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2019.(p.128). It is a dynamic of racism similar to which our myth of racial democracy is based, perpetrating inequalities even recognizing the unequal conditions in which Blacks and non-Blacks live.

In this setting, the Black population, particularly Black women, receives fewer resources and less care. Besides being racist practices in health, recognizable as such, and the target of combat strategies already proposed, they are also a way of understanding and relating to each other. It is the very notion of humanity. It is anti-Blackness2929 Reinehr JPM. Silêncios e confrontos: a saúde da população negra em burocracias do Sistema Único de Saúde (SUS) [tese]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2019., operating in an implicit but no less effective way.

Suffering, agency, re-existence, and gains

We arrived here with one certainty: we must return this trauma to the world, as Lima3737 Lima F. Um ebó artístico-epistêmico: desobediências poéticas em Grada Kilomba. Rev Esp Acad 2021; 20(226):42-54. tells us in a dialogue with Kilomba3838 Kilomba G. Ilusões: vol. II: Édipo. In: Kilomba G. Grada Kilomba: desobediências poéticas [e-book]. São Paulo: Pinacoteca de São Paulo; 2019.. The painful experiences of a racist and sexist societal logic help preserve Black women’s subordinate position, perpetuating stereotypes such as colonial heritage: “good for hard work”, “good in bed...”.

According to the 2020 Public Security Yearbook, Black female bodies are the target of insistent attempts at removal through psychological, physical, and social coercion: 66% of femicide victims are Black women, and 75% of violence against children and adolescents was committed against Black women3939 Fórum Brasileiro de Segurança Pública. Anuário Brasileiro de Segurança Pública 2020 [Internet]. 2020 [acessado 2021 maio 16]. Disponível em: https://forumseguranca.org.br/wp-content/uploads/2020/10/anuario-14-2020-v1-interativo.pdf.
https://forumseguranca.org.br/wp-content...
. For these and other reasons, the agency of Black women, in their daily efforts to survive to face structural, institutional, and contingent barriers, boosted the movement of Black women from the 1980s onwards when they started “[...] to organize themselves politically per their specific condition of being a woman and Black [...]”1818 Carneiro S. Escritos de uma vida. São Paulo: Pólen; 2019.(p.167). This militancy became threefold, as it included analyses of exclusion arising from race, sex, and class, manifesting itself in different national and international forums. Black women are creating their cosmogony through Black feminism, which offers a vision “of the self, the community, and society” where they live, a vision only they can describe1818 Carneiro S. Escritos de uma vida. São Paulo: Pólen; 2019.(p.183). Black women play a leading role in spaces hitherto entirely dominated by whiteness, such as academic spaces, an important locus for producing and reproducing knowledge and what is considered science.

Black men and women’s strength to re-exist stands as a “[...] positive inheritance for the struggle for their liberation or to express freedom and strength that are already theirs since their ancestry, since time immemorial”4040 Cestari MJ. Vozes-mulheres negras ou feministas e antirracistas graças às Yabás [tese]. Campinas: Universidade Estadual de Campinas; 2015.(p.232-233). This strength is renewed in groups because Black women also feel weakness and tiredness and need support. Healing processes need to be collective3737 Lima F. Um ebó artístico-epistêmico: desobediências poéticas em Grada Kilomba. Rev Esp Acad 2021; 20(226):42-54. and operate as an agent of collective change when confronting the patriarchal society4141 Werneck J. De ialodês a feministas [Internet]. Mulheres rebeldes; 2008 [acessado 2022 jan 15]. Disponível em: http://mulheresrebeldes.blogspot.com/2008/10/de-ialods-e-feministas.html.
http://mulheresrebeldes.blogspot.com/200...
. Despite the historical dynamics of coloniality pushing Black women to the place of suffering, this does not summarize them. On the contrary, the Black women’s agency is present in diverse social spaces and daily challenges the perverse plot that operates in the effort of their dis-subordination. The genocide of young Black men, a common practice in the Brazilian state, has resulted in many experiences of resistance and struggle by Black women - mothers, companions, sisters... Examples such as the path from “Mourning to Fighting” of the Mothers of Acari, the Mothers of Manguinhos, and the Muleke Movement4242 Araújo FA. Do luto à luta: a experiência das mães de Acari [dissertação]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2007. expose the daily effort not only to survive and overcome pain, mourning, and depression but also transform and build new meanings for Black existence, from a perspective of producing a future, which necessarily traverses the fight against racism.

As pointed out by Araújo et al.4343 Araújo VS, Souza ER, Silva VLM. "Eles vão certeiros nos nossos filhos": adoecimentos e resistências de mães de vítimas de ação policial no Rio de Janeiro, Brasil. Cien Saude Colet 2022; 27(4):1327-1336., “The resistance and how the Movement of Mothers act is close to the notion called Ubuntu - ‘I am because we are’ - in African philosophy”(p.1335). Facing the processes of illness in the face of racial violence, under which Black women are historically subjected, clearly outlines the power of re-existence in other bases of life, different from those imposed on us by the colonial plot to define the “Black men/women’s place”.

Health emergencies such as COVID-19 also make racial inequalities in health even more explicit4444 Radar Covid-19 Favela - Edição 01 [Internet]. [acessado 2022 jan 15]. Disponível em: https://www.arca.fiocruz.br/bitstream/icict/42581/2/semanario-covid-favelas-fiocruz-final.pdf.
https://www.arca.fiocruz.br/bitstream/ic...
. There are countless initiatives for the survival and re-existence of Black people in the face of the (in)action of the State, in the form of perpetuating institutional racism that shapes policies to combat the pandemic (social distancing, remote work, and access to environment and hand´s hygiene). An example is the creation of the Complexo de Favelas do Alemão Crisis Office, emphasizing the work of the Mulheres no Alemão movement, under the leadership of Camila Moradia, in partnership with Voz das Comunidades em Ação and Coletivo Papo Reto4545 Oliveira RG, Cunha AP, Gadelha AGS, Carpio CG, Oliveira RB, Corrêa RM. Desigualdades raciais e a morte como horizonte: considerações sobre a COVID-19 e o racismo estrutural. Cad Saude Publica 2020; 36(9):e00150120., which act on several fronts such as civil health surveillance, distribution of staple food baskets and hygiene material, and the political struggle against State violence in the favelas, which culminated in the ADPF 635, known as “ADPF Favelas”, which limited police actions to conduct operations in the favelas, sanctioned in June 2020 by the Federal Supreme Court4646 ADPF das Favelas. Vitória do povo negro e das favelas: STF exige mudanças imediatas na Segurança Pública do Rio [Internet]. [acessado 2022 jan 15]. Disponível em: https://www.adpfdasfavelas.org/.
https://www.adpfdasfavelas.org...
(STF). Similarly, the quilombola population also suffered and resisted. Examples such as the confrontation of COVID-19 by quilombola women from the Jequitinhonha Valley in Minas Gerais, as narrated by Maria Aparecida Machado Silva, from the quilombola community of Córrego do Rocha, in Chapada do Norte, Minas Gerais (MG):

They indirectly erased our smile, which is wonderful. However, even under the mask, we do not lose the joy of living, even with many challenges. I have heard it said, and I believe it, that being a woman is to be challenged tenfold; to be Black is tenfold more challenges; to be a quilombola is tenfold more. So, we are challenged thirty times over by being Black quilombola women. This pandemic also brought this impediment. However, we also found much strength to struggle and resist because we are also a strong resistance symbol4747 Valente PA, Schall B, Moreira AMF, Souza SE, Silva MAN, Silva MAM, Oliveira RG. Narrativas sobre a Covid-19 na vida de mulheres quilombolas do Vale do Jequitinhonha: estratégias contracolonizadoras de luta e (re)existência. In: Matta GC, Rego S, Souto EP, Segata J, editores. Os impactos sociais da Covid-19 no Brasil: populações vulnerabilizadas e respostas à pandemia. Rio de Janeiro: Observatório Covid-19, Editora Fiocruz; 2021. p. 171-180.(p.178).

Black feminism warns us about the need to talk about the experience of Black women in the world, the possibility of a non-excluding discourse and to consider how oppression operates and shapes the experiences of those women. The role of Black women’s movements, whose struggle agenda in health contributed decisively to the construction of the National Policy for Comprehensive Health of the Black Population, is a significant example of resistance, power, and production of life in colonial fracture spaces99 Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952., where the debate on care has a prominent place. Thinking about health care in our context necessarily implies racializing the debate and, therefore, breaking visions given to us by coloniality.

References

  • 1
    Quijano A. Colonialidad del poder y clasificacio´n social. In: Castro-Gómez S, Grosfoguel R, editores. El giro decolonial: reflexiones para una diversidad episte´mica ma´s allá del capitalismo global. Bogotá: Siglo del Hombre: Universidad Central, IESCO: Universidad Javeriana, Instituto Pensar; 2007. p. 93-126.
  • 2
    hooks b. Intelectuais negras. Estud Feministas 1995; 3(2):464-478.
  • 3
    Oliveira RG. Vidas em exclusão e a reinvenção do cuidado. Rio de Janeiro: Ed. Fiocruz; 2021.
  • 4
    Fanon F. Pele negra, máscaras brancas. Salvador: EdUFBA; 2008.
  • 5
    Quijano A. Colonialidade do poder e classificação social. In: Santos BS, Meneses MP, organizadores. Epistemologias do sul. São Paulo: Cortez; 2010. p. 84-130.
  • 6
    Florentino M. Em costas negras: uma história do tráfico de escravos entre a África e o Rio de Janeiro: séculos XVIII e XIX. São Paulo: Companhia das letras; 1997.
  • 7
    Brasil. Lei nº 2.040, de 28 de setembro de 1871. Declara de condição livre os filhos de mulher escrava que nascerem desde a data desta lei, libertos os escravos da Nação e outros, e providencia sobre a criação e tratamento daquelles filhos menores e sobre a libertação annaul [sic] de escravos [Internet]. Coleção de Leis do Brasil; 1871 [acessado 2021 mar 12]. Disponível em: http://www.planalto.gov.br/ccivil_03/leis/lim/lim2040.htm
    » http://www.planalto.gov.br/ccivil_03/leis/lim/lim2040.htm
  • 8
    Santos BS. Para além do pensamento abissal: das linhas globais a uma ecologia de saberes. In: Santos BS, Meneses MP, organizadores. Epistemologias do sul. São Paulo: Cortez; 2010. p. 31-83.
  • 9
    Lugones M. Rumo a um feminismo descolonial. Estud Feministas 2014; 22(3):935-952.
  • 10
    Leal MC, Gama SGN, Pereira APE, Pacheco VE, Carmo CN, Santos RV. A cor da dor: iniquidades raciais na atenção pré-natal e ao parto no Brasil. Cad Saude Publica 2017; 33(Supl. 1):1-17.
  • 11
    Trajano AJB, Monteiro DLM, Tavares LS, Alves PAR, Gonçalves TAP. Mortalidade materna no Estado do Rio de Janeiro em 2000 e 2011. Rev Hospital Univ Pedro Ernesto 2015; 14(2):47-53.
  • 12
    Criola. Dossiê mulheres negras e justiça reprodutiva (2020/2021) [Internet]. Rio de Janeiro: Criola; 2021 [acessado 2021 jan 16]. Disponível em: https://drive.google.com/file/d/1eHGSM3DmKx1m9NbXEqrFBKRQQnZgeoBx/view.
  • 13
    Cerqueira D, Ferreira H, Bueno S, coordenadores. Atlas da violência 2021 [Internet]. São Paulo: FBSP; 2021 [acessado 2022 fev 27]. Disponível em: https://www.ipea.gov.br/atlasviolencia/arquivos/artigos/1375-atlasdaviolencia2021completo.pdf.
  • 14
    Batista LE, Monteiro RB, Medeiros RA. Iniquidades raciais e saúde: o ciclo da política de saúde da população negra. Saude Debate 2013; 37(99):681-690.
  • 15
    Werneck J. Racismo institucional e saúde da população negra. Saude Soc 2016; 25(3):535-549.
  • 16
    Nascimento A. O genocídio do negro brasileiro: processo de um racismo mascarado. Rio de Janeiro: Paz e Terra; 1978.
  • 17
    Souza VS. A eugenia brasileira e suas conexões internacionais: uma análise a partir das controvérsias entre Renato Kehl e Edgard Roquette-Pinto, 1920-1930. Hist Cien Saude Manguinhos 2016; 23(Supl. 1):93-110.
  • 18
    Carneiro S. Escritos de uma vida. São Paulo: Pólen; 2019.
  • 19
    Passos RG. Mulheres negras, sofrimento e cuidado colonial. Em Pauta 2020; 18(45):116-129.
  • 20
    Rivera Cusicanqui S. Ch'ixinakax utxiwa: una reflexión sobre prácticas y discursos descolonizadores. Buenos Aires: Tinta Limón; 2010.
  • 21
    Truth S, Gilbert O. E eu não sou uma mulher?: a narrativa de Sojourner Truth. Rio de Janeiro: Imã Editorial; 2020.
  • 22
    Vargas JHC. Racismo não dá conta: antinegritude, a dinâmica ontológica e social definidora da modernidade. Em Pauta 2020; 18(45):16-26.
  • 23
    Beauvoir S. O segundo sexo. 5a ed. Rio de Janeiro: Nova Fronteira; 2019.
  • 24
    Kilomba G. Memórias da plantação: episódios de racismo cotidiano. Rio de Janeiro: Cobogó; 2019.
  • 25
    Spivak GC. Pode o subalterno falar? Belo Horizonte: Ed. UFMG; 2010.
  • 26
    Brasil. Ministério da Saúde (MS). Secretaria de Gestão Estratégica e Participativa. Departamento de Apoio à Gestão Participativa e ao Controle Social. Política nacional de saúde integral da população negra: uma política para o SUS. 3a ed. Brasília: MS; 2017.
  • 27
    Xavier ACF, Estevam MSC, Ferreira BBM, Florentino DM, Barbosa MF, Barbosa AC. Ser preta(o) e ter Covid-19: reflexões sobre racismo e iniquidades em saúde. Saude Com Cien 2021; (1):220-229.
  • 28
    Barbosa AC. O centro-dia, seus idosos e a sua família: um olhar sobre as relações de cuidado [dissertação]. Rio de Janeiro: Fiocruz; 2008.
  • 29
    Reinehr JPM. Silêncios e confrontos: a saúde da população negra em burocracias do Sistema Único de Saúde (SUS) [tese]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2019.
  • 30
    Carneiro F. Nossos passos vêm de longe. In: Werneck J, Mendonça M, White EC, organizadores. O livro da saúde das mulheres negras: nossos passos vêm de longe. 2ª ed. Rio de Janeiro: Pallas, Criola; 2006. p. 22-41.
  • 31
    Borret RH, Araujo DHS, Belford PS, Oliveira DOPS, Vieira RC, Teixeira DS. Reflexões para uma prática em saúde antirracista. Rev Bras Educ Med 2020; 44(Supl. 1):1-7.
  • 32
    Muñoz Sánchez AI, Bertolozzi MR. Pode o conceito de vulnerabilidade apoiar a construção do conhecimento em saúde coletiva? Cien Saude Colet 2007; 12(2):319-324.
  • 33
    Ayres JRCM [entrevistado por Castellanos MEP, Baptista TWF]. Entrevista com José Ricardo Ayres. Saude Soc 2018; 27(1):51-60.
  • 34
    Ayres JRCM. Sujeito, intersubjetividade e práticas de saúde. Cien Saude Colet 2001; 6(1):63-72.
  • 35
    Ayres JRCM. O cuidado, os modos de ser (do) humano e as práticas de saúde. Saude Soc 2004; 13(3):16-29.
  • 36
    Freire S. Xenofobia e racismo contra médicos cubanos [Internet]. Geledés; 2013 [acessado 2022 jan 15]. Disponível em: https://www.geledes.org.br/xenofobia-e-racismo-contra-medicos-cubanos/.
    » https://www.geledes.org.br/xenofobia-e-racismo-contra-medicos-cubanos
  • 37
    Lima F. Um ebó artístico-epistêmico: desobediências poéticas em Grada Kilomba. Rev Esp Acad 2021; 20(226):42-54.
  • 38
    Kilomba G. Ilusões: vol. II: Édipo. In: Kilomba G. Grada Kilomba: desobediências poéticas [e-book]. São Paulo: Pinacoteca de São Paulo; 2019.
  • 39
    Fórum Brasileiro de Segurança Pública. Anuário Brasileiro de Segurança Pública 2020 [Internet]. 2020 [acessado 2021 maio 16]. Disponível em: https://forumseguranca.org.br/wp-content/uploads/2020/10/anuario-14-2020-v1-interativo.pdf
    » https://forumseguranca.org.br/wp-content/uploads/2020/10/anuario-14-2020-v1-interativo.pdf
  • 40
    Cestari MJ. Vozes-mulheres negras ou feministas e antirracistas graças às Yabás [tese]. Campinas: Universidade Estadual de Campinas; 2015.
  • 41
    Werneck J. De ialodês a feministas [Internet]. Mulheres rebeldes; 2008 [acessado 2022 jan 15]. Disponível em: http://mulheresrebeldes.blogspot.com/2008/10/de-ialods-e-feministas.html
    » http://mulheresrebeldes.blogspot.com/2008/10/de-ialods-e-feministas.html
  • 42
    Araújo FA. Do luto à luta: a experiência das mães de Acari [dissertação]. Rio de Janeiro: Universidade Federal do Rio de Janeiro; 2007.
  • 43
    Araújo VS, Souza ER, Silva VLM. "Eles vão certeiros nos nossos filhos": adoecimentos e resistências de mães de vítimas de ação policial no Rio de Janeiro, Brasil. Cien Saude Colet 2022; 27(4):1327-1336.
  • 44
    Radar Covid-19 Favela - Edição 01 [Internet]. [acessado 2022 jan 15]. Disponível em: https://www.arca.fiocruz.br/bitstream/icict/42581/2/semanario-covid-favelas-fiocruz-final.pdf
    » https://www.arca.fiocruz.br/bitstream/icict/42581/2/semanario-covid-favelas-fiocruz-final.pdf
  • 45
    Oliveira RG, Cunha AP, Gadelha AGS, Carpio CG, Oliveira RB, Corrêa RM. Desigualdades raciais e a morte como horizonte: considerações sobre a COVID-19 e o racismo estrutural. Cad Saude Publica 2020; 36(9):e00150120.
  • 46
    ADPF das Favelas. Vitória do povo negro e das favelas: STF exige mudanças imediatas na Segurança Pública do Rio [Internet]. [acessado 2022 jan 15]. Disponível em: https://www.adpfdasfavelas.org/.
    » https://www.adpfdasfavelas.org
  • 47
    Valente PA, Schall B, Moreira AMF, Souza SE, Silva MAN, Silva MAM, Oliveira RG. Narrativas sobre a Covid-19 na vida de mulheres quilombolas do Vale do Jequitinhonha: estratégias contracolonizadoras de luta e (re)existência. In: Matta GC, Rego S, Souto EP, Segata J, editores. Os impactos sociais da Covid-19 no Brasil: populações vulnerabilizadas e respostas à pandemia. Rio de Janeiro: Observatório Covid-19, Editora Fiocruz; 2021. p. 171-180.

  • Funding

    Fundação Oswaldo Cruz (Fiocruz).

Publication Dates

  • Publication in this collection
    04 Sept 2023
  • Date of issue
    Sept 2023

History

  • Received
    03 June 2022
  • Accepted
    18 Sept 2022
  • Published
    20 Sept 2022
ABRASCO - Associação Brasileira de Saúde Coletiva Rio de Janeiro - RJ - Brazil
E-mail: revscol@fiocruz.br