Difficulties and advances in access to and use of health services by transgender women and travestis in Brazil

Thiago Félix Pinheiro Paula Galdino Cardin de Carvalho Gabriel Nolasco Lorruan Alves dos Santos Maria Amélia de Sousa Mascena Veras About the authors

ABSTRACT

Objective:

To understand the narratives of transgender women and travestis (TGW) from four Brazilian cities regarding access to and use of health services.

Methods:

Qualitative study carried out within the scope of the TransOdara project, cross-sectional multicenter mixed methods research conducted between 2019-2021. Fifty-two in-depth interviews with TGW in Manaus, Campo Grande, Porto Alegre and São Paulo were analyzed. The analysis was guided by philosophical hermeneutics.

Results:

Reports of discrimination, stigmatization and pathologization reiterate the difficulties faced by TGW in seeking healthcare. The recurrence of disrespect for the social/corrected name reveals obstacles to the recognition of transgender identities and, in some cases, the intention of inhibiting transsexuality-travestilidade. Other difficulties arise from actions that disregard the health specificities of TGW or the precarious social conditions that affect some of them. On the other hand, based on experiences of respect and adequate care, participants identify an ongoing change, which is expressed in greater availability of services and improved assistance. There is an expectation of continued expansion of services, technologies and training of health professionals.

Conclusions:

The identified change has been undertaken at the interface of public health policies with LGBT+ activism and the production of knowledge about TGW health needs. Although the identified advances are insufficient to change the scenario of the historical exclusion experienced by TGW in health services, they point to promising ways to improve their health conditions.

Keywords:
Transwomen; Travestis; Transsexualism; Transphobia; Health services; Barriers to access to health services

INTRODUCTION

In various regions worldwide, transgender individuals11The authors of Standards of Care, produced by the World Professional Association for Transgender Health’s (WPATH), in its eighth version (2022), use the term Transgender and Gender Diverse (TGD) to cover the greatest possible global variety of people with gender identities and expressions that differ from the gender assigned to them at birth1. In Brazil, the term trans has been used as an encompassing category of these different gender identities and expressions2. encounter challenges when seeking healthcare. This perpetuates significant social disparities manifested through intersectional discrimination, social marginalization, and violence. Within healthcare settings, they often experience transphobia, stigma, and face a lack of understanding, training, or outright refusal of care from healthcare providers11. Coleman E, Radix AE, Bouman WP, Brown GR, de Vries ALC, Deutsch MB, et al. Standards of care for the health of transgender and gender diverse people, version 8. Int J Transgend Health 2022; 23(Supp 1): S1-S259. https://doi.org/10.1080/26895269.2022.2100644
https://doi.org/10.1080/26895269.2022.21...
. Past negative encounters or the expectation of such experiences often deter transgender individuals from seeking healthcare services33. Lerner JE, Robles G. Perceived barriers and facilitators to health care utilization in the United States for transgender people: a review of recent literature. J Health Care Poor Underserved 2017; 28(1): 127-52. https://doi.org/10.1353/hpu.2017.0014
https://doi.org/10.1353/hpu.2017.0014...
.

In Brazil, despite the limited availability of data on the health status and needs of the transgender population, their heightened vulnerability to various health issues is evident. Specifically, among transgender women and travestis (TGW), studies have documented elevated rates of HIV and syphilis infection44. Bastos FI, Bastos LS, Coutinho C, Toledo L, Mota JC, Velasco-De-Castro CA, et al. HIV, HCV, HBV, and syphilis among transgender women from Brazil: assessing different methods to adjust infection rates of a hard-to-reach, sparse population. Medicine (Baltimore) 2018; 97(1S Suppl 1): S16-S24. https://doi.org/10.1097/MD.0000000000009447
https://doi.org/10.1097/MD.0000000000009...

5. Grinsztejn B, Jalil EM, Monteiro L, Velasque L, Moreira RI, Garcia ACF, et al. Unveiling of HIV dynamics among transgender women: a respondent-driven sampling study in Rio de Janeiro, Brazil. Lancet HIV 2017; 4(4): e169-e176. https://doi.org/10.1016/S2352-3018(17)30015-2
https://doi.org/10.1016/S2352-3018(17)30...
-66. Veras MASM. Sexo em tempos de prevenção antirretroviral. In: Leite V, Terto Jr T, Parker V, eds. Dimensões sociais e políticas da prevenção. Rio de Janeiro: ABIA; 2020. p. 81-5., as well as increased prevalence of anxiety, depression, psychological distress, suicidal ideation, and suicide attempts77. Reis A, Sperandei S, Carvalho PGC, Pinheiro TF, Moura FD, Gomez JL, et al. A cross-sectional study of mental health and suicidality among trans women in São Paulo, Brazil. BMC Psychiatry 2021; 21(1): 557. https://doi.org/10.1186/s12888-021-03557-9
https://doi.org/10.1186/s12888-021-03557...
,88. Chinazzo IR, Lobato MIR, Nardi HC, Koller SH, Saadeh A, Costa AB. Impacto do estresse de minoria em sintomas depressivos, ideação suicida e tentativa de suicídio em pessoas trans. Ciênc Saúde Coletiva 2021; 26(suppl 3): 5045-56. https://doi.org/10.1590/1413-812320212611.3.28532019
https://doi.org/10.1590/1413-81232021261...
.

Healthcare initiatives targeting TGW were originated from grassroots activism during the HIV/AIDS epidemic, exemplified by organizations like Casa Brenda Lee99. Carrijo GG, Simpson K, Rasera EF, Prado MAM, Teixeira FB. Movimentos emaranhados: travestis, movimentos sociais e práticas acadêmicas. Rev Estud Fem 2019; 27(2): e54503. https://doi.org/10.1590/1806-9584-2019v27n254503
https://doi.org/10.1590/1806-9584-2019v2...
in the 1980s. These early initiatives played a crucial role in shaping the government’s response to the epidemic, including funding for Non-Governmental Organizations (NGOs) and tailored interventions for specific populations. However, formal public health policies directed at TGW only began to take shape in the 2000s1010. Calazans GJ, Pinheiro TF, Ayres JRCM. Vulnerabilidade programática e cuidado público: Panorama das políticas de prevenção do HIV e da Aids voltadas para gays e outros HSH no Brasil. Sex Salud Soc (Rio J.). 2018; 29: 263-93. https://doi.org/10.1590/1984-6487.sess.2018.29.13.a
https://doi.org/10.1590/1984-6487.sess.2...
.

The National Policy for Comprehensive Health for Lesbians, Gays, Bisexuals, Travestis, and Transsexuals, developed in 2011, aims to foster equity within the Brazilian Unified Health System (Sistema Único de Saúde – SUS) by addressing institutional discrimination related to sexual orientation and gender identity, and its impacts on health, illness, and care processes. Its goals include enhancing access to SUS healthcare services and ensuring access to the process of gender reassignment, initially regulated by the Ministry of Health in 2008 and further defined and expanded in 20131111. Popadiuk GS, Oliveira DC, Signorelli MC. A Política Nacional de Saúde Integral de Lésbicas, Gays, Bissexuais e Transgêneros (LGBT) e o acesso ao Processo Transexualizador no Sistema Único de Saúde (SUS): avanços e desafios. Ciênc Saúde Colet 2017; 22(5): 1509-20. https://doi.org/10.1590/1413-81232017225.32782016
https://doi.org/10.1590/1413-81232017225...
.

The demand for public policies to address the healthcare needs of the transgender population is escalating, given the persistent inadequacies in both public and private health systems to adequately respond to their requirements. There is a clear shortage of services and healthcare professionals equipped to care for this population1212. Carrara S, Hernandez JG, Uziel AP, Conceição GMS, Panjo H, Baldanzi ACO, et al. Body construction and health itineraries: a survey among travestis and trans people in Rio de Janeiro, Brazil. Cad Saude Publica 2019; 35(4): e00110618. https://doi.org/10.1590/0102-311X00110618
https://doi.org/10.1590/0102-311X0011061...
. Furthermore, access to information about available options remains limited, even regarding services specifically dedicated to gender affirmation1313. Costa AB, Rosa Filho HT, Pase PF, Fontanari AMV, Catelan RF, Mueller A, et al. Healthcare needs of and access barriers for brazilian transgender and gender diverse people. J Immigr Minor Health 2018; 20(1): 115-23. https://doi.org/10.1007/s10903-016-0527-7
https://doi.org/10.1007/s10903-016-0527-...
.

Transgender individuals in Brazil face significant challenges in accessing and staying in healthcare services, primarily due to the pervasive transphobia present in these settings. Particularly among TGW, there is a prevalent complaint that healthcare professionals often limit their approach to issues related solely to Sexually Transmitted Infections (STIs)1414. Rossi TA, Brasil SA, Magno L, Veras MA, Pinheiro TF, Pereira M, et al. Conhecimentos, percepções e itinerários terapêuticos de travestis e mulheres trans no cuidado a infecções sexualmente transmissíveis em Salvador, Brasil. Sex Salud Soc (Rio J.). 2022; 38: e22304. https://doi.org/10.1590/1984-6487.sess.2022.38.e22304.a
https://doi.org/10.1590/1984-6487.sess.2...
,1515. Nolasco GLP, Lopes ZA, Arruda DO. “Ela é boa de cuspir, maldita Geni!”: reflexões sobre violências contra os corpos dissidentes de travestis em Campo Grande/MS. Revista Ártemis 2020; 29(1): 205-21. https://doi.org/10.22478/ufpb.1807-8214.2020v29n1.47316
https://doi.org/10.22478/ufpb.1807-8214....
. This narrow focus serves to reinforce stigmatization. Paradoxically, TGW lack assured access to sufficient prevention and treatment for these infections1313. Costa AB, Rosa Filho HT, Pase PF, Fontanari AMV, Catelan RF, Mueller A, et al. Healthcare needs of and access barriers for brazilian transgender and gender diverse people. J Immigr Minor Health 2018; 20(1): 115-23. https://doi.org/10.1007/s10903-016-0527-7
https://doi.org/10.1007/s10903-016-0527-...
. For instance, they face multiples barriers in obtaining Pre-Exposure Prophylaxis (PrEP)1616. Wilson EC, Jalil EM, Castro C, Fernandez NM, Kamel L, Grinsztejn B. Barriers and facilitators to PrEP for transwomen in Brazil. Glob Public Health 2019; 14(2): 300-8. https://doi.org/10.1080/17441692.2018.1505933
https://doi.org/10.1080/17441692.2018.15...
, despite being prioritized in combination HIV prevention policies. Moreover, stigmatization arises when healthcare professionals unfairly characterize them as promiscuous or presume their involvement in sex work1717. Tagliamento G, Paiva V. Trans-specific health care: challenges in the context of new policies for transgender people. J Homosex 2016; 63(11): 1556-72. https://doi.org/10.1080/00918369.2016.1223359
https://doi.org/10.1080/00918369.2016.12...
.

Given the advances in visibility and social recognition of the transgender population in Brazil, Monteiro and Brigeiro1818. Monteiro S, Brigeiro M. Experiências de acesso de mulheres trans/travestis aos serviços de saúde: avanços, limites e tensões. Cad Saúde Pública 2019; 35(4): e00111318. https://doi.org/10.1590/0102-311x00111318
https://doi.org/10.1590/0102-311x0011131...
observe that discrimination related to gender identity does not necessarily preclude TGW access to services. They employ various strategies to navigate these challenging environments, including adopting intense feminine docility, refining typical middle-class manners, expressing awareness of their rights as citizens, and demonstrating knowledge about the functioning and rules of public institutions.

This study aimed to explore the narratives of TGW from four cities in Brazil concerning their access to and utilization of healthcare services, in light of recent social changes shaping the relationship between the transgender population and the healthcare system. The research investigated memories and reflections on their experiences while seeking healthcare.

METHODS

This qualitative study is a component of the TransOdara project, a cross-sectional multicenter mixed methods research conducted from 2019 to 2021. The main objective of the project was to estimate the prevalence of syphilis and other STIs among TGW, while also exploring the significance they associate to syphilis and their experiences in accessing and utilizing health services. To this end, the project implemented a point-of-care strategy in collaboration with partner health services, in order to integrate diagnosis, treatment, and prevention of various STIs within the care provided to participants. Additionally, it sought to stimulate, support, and optimize the presence of TGW in these healthcare settings1919. Veras MASM, Pinheiro TF, Galan L, et al. TransOdara study: The challenge of integrating methods, settings and procedures during the COVID-19 pandemic in Brazil. Rev Bras Epidemiol. 2024; 27(Suppl 1): e240002.supl.1. https://doi.org/10.1590/1980-549720240002.supl.1
https://doi.org/10.1590/1980-54972024000...
.

This article examines 52 in-depth interviews with TGW who were either undergoing follow-up in the epidemiological component or engaged in other project activities across four cities: Manaus, Campo Grande, Porto Alegre, and São Paulo. It is important to note that the TransOdara project was also conducted in Salvador — data regarding access and utilization of services in that location were previously published by Rossi et al.1414. Rossi TA, Brasil SA, Magno L, Veras MA, Pinheiro TF, Pereira M, et al. Conhecimentos, percepções e itinerários terapêuticos de travestis e mulheres trans no cuidado a infecções sexualmente transmissíveis em Salvador, Brasil. Sex Salud Soc (Rio J.). 2022; 38: e22304. https://doi.org/10.1590/1984-6487.sess.2022.38.e22304.a
https://doi.org/10.1590/1984-6487.sess.2...
.

The selection of participants aimed to ensure diversity across categories such as age, education, professional activity (e.g., sex workers versus other occupations), and current or previous diagnosis of syphilis. The interview guide, in addition to collecting sociodemographic information, addressed topics related to health status, gender transition, experiences with STIs, treatment pathways, and interactions with healthcare professionals and services. Participants were contacted via phone calls and/or messages through applications, utilizing databases from other project activities. Interviews were conducted by trained researchers who were familiarized with the study. In some cases, the interviewer and interviewee were already familiar with each other from previous activities or research endeavors. Interviews in Manaus, Campo Grande, and São Paulo were conducted face-to-face in protected spaces at partner institutions of the project. In Porto Alegre, interviews were conducted over the phone due to restrictions imposed by the worsening of the COVID-19 pandemic. A stipend of R$50.00 was offered to compensate for any expenses related to participation. All interviews were audio recorded, transcribed, reviewed, and subsequently categorized by the authors.

The analytical approach was grounded in epistemological principles derived from philosophical hermeneutics2020. Gadamer HG. Verdade e método: traços fundamentais de uma hermenêutica filosófica. Petrópolis: Editora Vozes; 2008.. According to this perspective, the interpretative process involves a dialogue between the discourse generated by the participants, academic literature, and researchers, who serve as interpreters in the recontextualization of meanings. This dialogical process of understanding and interpretation is conceptualized as a “fusion of horizons,” wherein one horizon is merged with another to facilitate mutual accommodation.

The procedure adopted the following steps:

  1. a)

    comprehensive reading of narratives with the purpose of impregnation, overview and understanding of particularities;

  2. b)

    categorization of themes;

  3. c)

    interpretation of the experiences, perceptions, and reflections of the interviewees;

  4. d)

    articulation with literature; and

  5. e)

    synthesis of meanings about access to and use of health services.

The project was approved by the Research Ethics Committee of the Santa Casa de Misericórdia de São Paulo (CAAE 05585518.7.0000.5479; opinion n°: 3.126.815 – 30/01/2019), as well as by other participating institutions.The interviewees signed an Informed Consent Form.

RESULTS

The participants’ ages ranged from 18 to 58 years old, with a mean age of 34 years old. The majority self-identified as travesti (21/52) or transgender woman (19/52). Regarding sexual orientation, the majority self-identified as heterosexual (33/52), followed by bisexual/pansexual (6) and homosexual/gay/lesbian (3). In terms of race/color, 25 identified themselves as brown, 12 as black, 10 as white, 1 as indigenous, and 1 as yellow. Concerning to education, 23 had completed secondary education, while the proportions of participants with higher education (15/52) and primary education (14/52) were similar. The majority reported a monthly income ranging from R$1,000.00 to R$2,000.00 (22/52), while 6 had an income of less than R$500.00, and 1 had no income at all. Eighteen participants were engaged in sex work, 4 were students, and 5 were unemployed. Among the remaining participants, the majority worked without a formal contract. Regarding living arrangements, most lived in their own house/apartment (16/52) or rented accommodation (15/52), while 13 lived with their family and 3 lived with friends. Further detailed characterization of each participant is presented in Chart 1.

Chart 1
Sociodemographic characterization of the participants.

The narratives of the TGW interviewed reveal a significant polarization in their experiences of accessing and using health services. On one side, they recount instances of discrimination, stigmatization, and pathologization of their identities and lifestyles, highlighting a historical pattern of institutional transphobia perpetuated through the attitudes and behaviors of health professionals, as well as in the structure of services. Conversely, they also share positive experiences characterized by respect and adequate care. Through these accounts, participants identify an ongoing shift reflected in the increased availability of services and enhancements in TGW healthcare.

Difficulties in accessing and using health services

Transphobia manifests through a spectrum of social dynamics within healthcare settings, spanning from subtle glances to overtly discriminatory actions or barriers hindering to assistance. Discrimination is acknowledged as a pervasive reality by interviewees across different demographics, including age, race/color, education, and professional activity. They report experiencing peculiar reactions and subtle forms of discrimination from health professionals or other service users. These encounters not only embarrass TGW but also hinder their ongoing use of services and impact their health by compromising the effectiveness of care (Excerpts 1-4, Chart 2).

Chart 2
Selected excerpts from the participants’ narratives

There are consistent reports indicating that health professionals and other service staff persist in using the name registered at birth, even when they are aware of the preferred name chosen by the TGW. Interviewees note that professionals encounter difficulty or resistance in making adjustments to names, pronouns, and gender references in documents, information systems, and communication within the services. In certain instances, the disregard for the social/corrected name and preferred pronouns not only reflects obstacles in recognizing transgender identities but also suggests an intention to inhibit or penalize transsexuality-travestilidade (Excerpt 5, Chart 2).

Additional challenges arise from actions that overlook the unique needs of TGW seeking services. TGW expressed feelings of disrespect and lack of support when receiving care tailored for cisgender individuals or based solely on their assigned gender at birth. Indeed, some accounts reveal indicators of abuse of authority and efforts to assert dominance by imposing specific conditions of care. Similarly, care that fails to address the precarious social circumstances impacting the health and care options of certain TGW becomes constrained or even ineffectual (Excerpts 6 and 7, Chart 2).

Expansion of services and improvement in care

Positive healthcare experiences highlight efforts to alleviate social and health disparities affecting TGW. Interviewees emphasize that crucial elements for quality care include respect for gender identity and the preparation of healthcare professionals to attend to this population. These criteria prove to be more significant than other factors such as geographic location — leading some TGW to travel to distant neighborhoods to access appropriate care (Excerpts 8 and 9, Chart 2). While Emergency Care and Basic Health Units are mentioned, there is notable recognition of the efforts made in specialized services for STIs/HIV/AIDS or gender transition, specifically concerning the mentioned criteria. This recognition was not attributed to particular professional categories.

The reference to the experiences lived in the partner services of the project from which this study derives highlights the importance of strategies employed for the following purposes:

  1. a)

    expanding the dissemination of services on TGW networks;

  2. b)

    making it possible to go to services, especially for those for whom the cost of travel may be an impediment to seeking care;

  3. c)

    improving the user’s engagement with the service, enhancing the range of technologies available and addressing issues such as delay and fragmentation of interventions — typical problems of the health system, which, in the case of populations less linked to services, can significantly affect the continuity of care (Excerpts 10 and 11, Chart 2).

Positive experiences serve as a contrasting element to the challenges that have historically defined the relationship between transgender individuals and healthcare services. Particularly, older interviewees note significant advancements, including the increasing acknowledgment of this population’s right to healthcare, the expansion of research and discourse on health-related topics, the greater availability of services tailored to their needs, and improvements in professional training to care for this population (Excerpts 12-14, Chart 2).

The interviewees express expectations for the expansion of services, extended operating hours, and increased availability of technologies, along with enhanced care for transgender individuals (Excerpts 15 and 16, Chart 2). They also emphasize the importance of training or educating healthcare professionals as a crucial component of ongoing improvements. This training is seen as vital for fostering more respectful attitudes and actions, as well as for enhancing understanding of transsexuality-travestilidade and the technical expertise required to address the healthcare needs of this population (Excerpts 17-19, Chart 2).

The envisioned change in access to and utilization of healthcare services ultimately addresses structural issues that have historically led to social and health inequities, reflected, for instance, in the underrepresentation of transgender individuals in the development and implementation of health policies and actions, resulting in healthcare being predominantly provided by cisgender individuals, often from a cisgender perspective (Excerpts 20 and 21, Chart 2).

DISCUSSION

The analysis of the challenges encountered by the TGW interviewed regarding access to and utilization of healthcare services reaffirms the findings documented in existing literature. It underscores the extent of health inequities stemming from structural transphobia and its consequential impact on the health and well-being of TGW11. Coleman E, Radix AE, Bouman WP, Brown GR, de Vries ALC, Deutsch MB, et al. Standards of care for the health of transgender and gender diverse people, version 8. Int J Transgend Health 2022; 23(Supp 1): S1-S259. https://doi.org/10.1080/26895269.2022.2100644
https://doi.org/10.1080/26895269.2022.21...
,33. Lerner JE, Robles G. Perceived barriers and facilitators to health care utilization in the United States for transgender people: a review of recent literature. J Health Care Poor Underserved 2017; 28(1): 127-52. https://doi.org/10.1353/hpu.2017.0014
https://doi.org/10.1353/hpu.2017.0014...
,1313. Costa AB, Rosa Filho HT, Pase PF, Fontanari AMV, Catelan RF, Mueller A, et al. Healthcare needs of and access barriers for brazilian transgender and gender diverse people. J Immigr Minor Health 2018; 20(1): 115-23. https://doi.org/10.1007/s10903-016-0527-7
https://doi.org/10.1007/s10903-016-0527-...
,2121. Rocon PC, Rodrigues A, Zamboni J, Pedrini MD. Dificuldades vividas por pessoas trans no acesso ao Sistema Único de Saúde. Ciênc Saúde Colet 2016;21(8): 2517-26. https://doi.org/10.1590/1413-81232015218.14362015
https://doi.org/10.1590/1413-81232015218...

22. Benevides BG Dossiê assassinatos e violências contra travestis e transexuais brasileiras em 2022. Brasília: Associação Nacional de Travestis e Transexuais; 2023.
-2323. Moraes AND, Silva GSN. Transvestites and humanized health care. Rev Abordagem Gestalt 2020; 26(2): 175-87. https://doi.org/10.18065/2020v26n2.5
https://doi.org/10.18065/2020v26n2.5...
. This highlights an ethical and practical contradiction inherent within healthcare environments. While TGW seek relief or prevention of illness, these spaces frequently manifest as hostile environments, repelling them instead of providing the expected support, thereby exacerbating their vulnerability to various health issues.

Many of these challenges are directly linked to sexual and gender discrimination, although TGW also face obstacles commonly experienced by other users of SUS, including extended waiting times, lack of information, and a shortage of doctors1818. Monteiro S, Brigeiro M. Experiências de acesso de mulheres trans/travestis aos serviços de saúde: avanços, limites e tensões. Cad Saúde Pública 2019; 35(4): e00111318. https://doi.org/10.1590/0102-311x00111318
https://doi.org/10.1590/0102-311x0011131...
. The persistent disregard for their social/corrected names and gender identities not only denies their established rights22Ordinance No. 1.820, of August 13, 2009, of the Ministry of Health, establishes as a right, in the health services network, humanized, welcoming care, free from any discrimination, restriction or denial due to gender identity, among other features. It also resolves that there must be a field in every user’s document to register the social name independent of the civil registry, ensuring the use of the preferred name (Available at https://bvsms.saude.gov.br/bvs/saudelegis/gm/2009/prt1820_13_08_2009.html). but also hinders their access to services and leads to treatment abandonment1313. Costa AB, Rosa Filho HT, Pase PF, Fontanari AMV, Catelan RF, Mueller A, et al. Healthcare needs of and access barriers for brazilian transgender and gender diverse people. J Immigr Minor Health 2018; 20(1): 115-23. https://doi.org/10.1007/s10903-016-0527-7
https://doi.org/10.1007/s10903-016-0527-...
,1414. Rossi TA, Brasil SA, Magno L, Veras MA, Pinheiro TF, Pereira M, et al. Conhecimentos, percepções e itinerários terapêuticos de travestis e mulheres trans no cuidado a infecções sexualmente transmissíveis em Salvador, Brasil. Sex Salud Soc (Rio J.). 2022; 38: e22304. https://doi.org/10.1590/1984-6487.sess.2022.38.e22304.a
https://doi.org/10.1590/1984-6487.sess.2...
,2121. Rocon PC, Rodrigues A, Zamboni J, Pedrini MD. Dificuldades vividas por pessoas trans no acesso ao Sistema Único de Saúde. Ciênc Saúde Colet 2016;21(8): 2517-26. https://doi.org/10.1590/1413-81232015218.14362015
https://doi.org/10.1590/1413-81232015218...
,2424. Lionço T. Atenção integral à saúde e diversidade sexual no Processo Transexualizador do SUS: avanços, impasses, desafios. Physis 2009; 19(1): 43-63. https://doi.org/10.1590/S0103-73312009000100004
https://doi.org/10.1590/S0103-7331200900...
.

The manifestations of punishment and subjugation, as recounted by the interviewees regarding the attitudes of healthcare professionals, underscore how gender conceptions and disputes in sexual morality contribute to the social dynamics within healthcare settings. Consequently, the presence of TGW in these spaces often leads to potential tensions and conflicts, deterring them from seeking healthcare services. Systemic transphobia is also evident in the inadequate training and competency of healthcare professionals to address the identities, concerns, and specific healthcare needs of transgender individuals1616. Wilson EC, Jalil EM, Castro C, Fernandez NM, Kamel L, Grinsztejn B. Barriers and facilitators to PrEP for transwomen in Brazil. Glob Public Health 2019; 14(2): 300-8. https://doi.org/10.1080/17441692.2018.1505933
https://doi.org/10.1080/17441692.2018.15...
,2323. Moraes AND, Silva GSN. Transvestites and humanized health care. Rev Abordagem Gestalt 2020; 26(2): 175-87. https://doi.org/10.18065/2020v26n2.5
https://doi.org/10.18065/2020v26n2.5...
. This perpetuates a vicious cycle where societal manifestations of transphobia intersect with the absence of public policies aimed at safeguarding the rights of transgender individuals, further compounded by inadequate readiness of healthcare services and professionals to address their needs. While difficulties in accessing and utilizing services may also intersect with other forms of discriminatory social dynamics, such as racism2525. Nogueira FJS, Leitão ESF, Silva ECS. Interseccionalidades na experiência de pessoas trans nos serviços de saúde. Rev Psicol Saúde 2021; 13(3): 35-50. https://doi.org/10.20435/pssa.v13i3.1243
https://doi.org/10.20435/pssa.v13i3.1243...
, this aspect was not explicitly addressed in the interviews.

Positive experiences, on the other hand, signify progress in developing healthcare practices that honor the identities and unique needs of TGW, effectively addressing their healthcare requirements. The recognition that access to and utilization of healthcare services are evolving remains relatively underexplored in the literature. This acknowledgment reflects the recent expansion of services tailored to TGW, as well as improvements in their healthcare experiences and outcomes.

The anticipation for ongoing expansions and enhancements underscores the insufficiency of the progress made thus far in changing the enduring pattern of exclusion experienced by TGW within healthcare services. However, this outlook also reinforces promising avenues for improvement. Recognition of the quality of care received, particularly in specialized services focusing on STIs/HIV/AIDS and gender transition, as well as in the partner services of this project, validates the effectiveness of strategies implemented in these settings to combat discrimination and provide tailored healthcare interventions addressing the unique health needs of TGW, thereby alleviating the social inequities they face.

The observed shift is a product of the intersection between public health policies and LGBT+ activism, coupled with increased awareness and visibility of TGW in Brazil through their political advocacy efforts1818. Monteiro S, Brigeiro M. Experiências de acesso de mulheres trans/travestis aos serviços de saúde: avanços, limites e tensões. Cad Saúde Pública 2019; 35(4): e00111318. https://doi.org/10.1590/0102-311x00111318
https://doi.org/10.1590/0102-311x0011131...
. This evolution is further fueled by the recent surge in academic discourse surrounding the health issues affecting this population. According to Favero2626. Favero S. Por uma ética pajubariana: a potência epistemológica das travestis intelectuais. Equatorial 2020; 7(12): 1-22. https://doi.org/10.21680/2446-5674.2020v7n12ID18520
https://doi.org/10.21680/2446-5674.2020v...
, the emergence of “trans studies” in the 2000s expanded beyond the narrow focus on TGW involvement in sex work, sparking discussions on health and clinical care, particularly regarding the depathologization of gender within diagnostic frameworks. The advent of transfeminism33Transfeminism consists of a line of feminist thought and practice based on the process of political consciousness and resistance of transgender people, as well as black feminism, mainly on the concepts of intersectionality and non-hierarchy of oppression. Re-discusses the morphological subordination of gender to sex, which has served as a justification for the oppression of people whose bodies do not conform to the binary norm man/penis and woman/vagina28. ushered in a new era of political mobilization for this population, extending beyond the traditional NGO sphere focused on HIV/AIDS advocacy. The growing presence of TGW in academic institutions has facilitated a transition from being subjects of research to active researchers, driving demands for epistemological acknowledgment of their worldviews, including their perspectives on health and well-being. Consequently, several interviewees stress the imperative of dismantling systemic barriers that exclude TGW from participating in the formulation and implementation of healthcare policies and initiatives, often dominated by cisnormative perspectives.

Since this study involved the utilization of healthcare services by the participants, it is conceivable that the reporting of encountered challenges might have been alleviated by the participants successfully surmounting certain potential access barriers. Additionally, despite the implementation of dissemination strategies and invitations to participate, it is plausible that some TGW, particularly those situated within more extreme contexts of vulnerability, such as those with limited social networks or residing in areas with inadequate infrastructure (e.g., lacking public transportation, internet access, etc.), may not have been included in the study. Comparisons between the results by region were not possible due to specificities in carrying out the research in each site, especially with regard to the adaptations necessary to face the COVID-19 pandemic.

The narratives examined reveal the intersection of two conflicting movements in the interaction between TGW and healthcare services. This contradiction becomes particularly pronounced against the backdrop of Brazil’s current political and social landscape. The resurgence of conservatism in recent years — characterized by the rise of religious fundamentalism within the government and attacks on gender and sexuality studies and discourse — has led to an escalation of transphobia in its various forms and a curtailment of the rights of transgender individuals2727. Silva ELS. Neoconservadorismo e ofensivas antigênero no Brasil: a mobilização da “Ideologia de Gênero” e a produção de LGBTfobias no Governo Bolsonaro. REBEH 2022; 4(14): 331-63. https://doi.org/10.31560/2595-3206.2021.14.12172
https://doi.org/10.31560/2595-3206.2021....
. Conversely, the post-pandemic return to democracy, marked by the election of TGW to political office and the reconfiguration of public health and human rights policies, creates opportunities for the achievements made or anticipated to be widely and consistently implemented, thereby effecting tangible improvements in the healthcare outcomes of transgender people.

ACKNOWLEDGMENTS:

To the transgender women and travestis who participated in the TransOdara Study and the team of professionals from the Ministry of Health – Department of Chronic Diseases and Sexually Transmitted Infections (Departamento de Doenças de Condições Crônicas e Infecções Sexualmente Transmissíveis – DCCI) and the Pan American Health Organization (PAHO).

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  • Funding: This study was funded by the Pan American Health Organization (PAHO) / Ministry of Health of Brazil – Department of Chronic Conditions and Sexually Transmitted Infections (DCCI) (Agreement n°: SCON2019-00162).

  • 1
    The authors of Standards of Care, produced by the World Professional Association for Transgender Health’s (WPATH), in its eighth version (2022), use the term Transgender and Gender Diverse (TGD) to cover the greatest possible global variety of people with gender identities and expressions that differ from the gender assigned to them at birth11. Coleman E, Radix AE, Bouman WP, Brown GR, de Vries ALC, Deutsch MB, et al. Standards of care for the health of transgender and gender diverse people, version 8. Int J Transgend Health 2022; 23(Supp 1): S1-S259. https://doi.org/10.1080/26895269.2022.2100644
    https://doi.org/10.1080/26895269.2022.21...
    . In Brazil, the term trans has been used as an encompassing category of these different gender identities and expressions22. Carvalho M. “Travesti”, “mulher transexual”, “homem trans” e “não binário”: interseccionalidades de classe e geração na produção de identidades políticas. Cad Pagu 2018; 52: e185211. https://doi.org/10.1590/1809444920100520011
    https://doi.org/10.1590/1809444920100520...
    .
  • 2
    Ordinance No. 1.820, of August 13, 2009, of the Ministry of Health, establishes as a right, in the health services network, humanized, welcoming care, free from any discrimination, restriction or denial due to gender identity, among other features. It also resolves that there must be a field in every user’s document to register the social name independent of the civil registry, ensuring the use of the preferred name (Available at https://bvsms.saude.gov.br/bvs/saudelegis/gm/2009/prt1820_13_08_2009.html).
  • 3
    Transfeminism consists of a line of feminist thought and practice based on the process of political consciousness and resistance of transgender people, as well as black feminism, mainly on the concepts of intersectionality and non-hierarchy of oppression. Re-discusses the morphological subordination of gender to sex, which has served as a justification for the oppression of people whose bodies do not conform to the binary norm man/penis and woman/vagina2828. Jesus JG. Transfeminismo: teorias e práticas. Rio de Janeiro: Metanoia; 2015..

Publication Dates

  • Publication in this collection
    19 Aug 2024
  • Date of issue
    2024

History

  • Received
    29 Oct 2023
  • Reviewed
    17 Feb 2024
  • Accepted
    20 Feb 2024
Associação Brasileira de Pós -Graduação em Saúde Coletiva São Paulo - SP - Brazil
E-mail: revbrepi@usp.br