Abstract:
This review aimed to identify and synthesize the perceptions of mental healthcare professionals, family members, and users about mental health crisis interventions for children and adolescents at hospitals and community mental health services. A qualitative systematic review was conducted following the Joanna Briggs Institution guidelines. The search was performed in 15 databases, with no temporal delimitation, and included studies in Portuguese, English, and Spanish. All works were assessed regarding methodological quality, credibility, and dependability according to the ConQual score and the recommendations were assessed following the Joanna Briggs Institution guidelines. In total, two independent reviewers screened and assessed the studies, extracted their data, developed categories, and conducted the thematic synthesis. A total of 13 studies met the inclusion and exclusion criteria. From these, five syntheses were developed: importance of relationships; importance of procedures during treatment; positive emotional responses to treatment; negative emotional responses to treatment; and issues with health professionals and health services. All five syntheses presented high dependability; two syntheses presented high credibility; and three presented moderate credibility. Mental healthcare professionals, family members and users had convergent perceptions about crisis intervention provided at healthcare services. Understanding their perceptions to improve care and the user experience in this vulnerable situation is crucial.
Keywords:
Mental Health; Crisis Intervention; Child; Adolescent; Perception
Resumo:
Esta revisão teve como objetivo identificar e sintetizar as percepções de profissionais de saúde mental, familiares e usuários sobre a intervenção em crises de saúde mental de crianças e adolescentes em hospitais e serviços comunitários especializados. Uma revisão sistemática qualitativa foi conduzida de acordo com as diretrizes do Instituto Joanna Briggs. A busca foi feita em 15 bases de dados, sem delimitação temporal, selecionando estudos nos idiomas português, inglês e espanhol. Todos os estudos incluídos foram avaliados quanto à qualidade metodológica, credibilidade e confiabilidade de acordo com o escore ConQual e as recomendações foram avaliadas pelas diretrizes do Instituto Joanna Briggs. Dois revisores independentes examinaram e avaliaram os estudos, extraíram dados, e elaboraram categorias e síntese temática. Ao todo, 13 estudos atenderam aos critérios de inclusão e exclusão. Foram elaboradas cinco sínteses: importância dos relacionamentos; importância dos procedimentos durante o tratamento; respostas emocionais positivas ao tratamento; respostas emocionais negativas ao tratamento; e questões sobre a equipe de saúde e os serviços de saúde. Todas as cinco sínteses apresentaram alta confiabilidade; duas sínteses apresentaram alta credibilidade; e três apresentaram credibilidade moderada. Profissionais de saúde mental, familiares e usuários apresentaram percepções convergentes sobre a intervenção em crises prestada nos serviços de saúde. É fundamental entender as percepções do usuário para melhorar seu atendimento e experiência nessa situação vulnerável.
Palavras-chave:
Saúde Mental; Intervenção em Crise; Criança; Adolescente; Percepção
Resumen:
Esta revisión tuvo como objetivo identificar y sintetizar las percepciones de profesionales de salud mental, familiares y usuarios sobre la intervención en crisis de salud mental de niños y adolescentes en hospitales y servicios comunitarios especializados. Se realizó una revisión sistemática cualitativa de acuerdo con las directrices del Instituto Joanna Briggs. La búsqueda se realizó en 15 bases de datos, sin delimitación temporal, seleccionando estudios en portugués, inglés y español. Todos los estudios incluidos se evaluaron en cuanto a la calidad metodológica, la credibilidad y la confiabilidad de acuerdo con la puntuación ConQual y las recomendaciones se evaluaron utilizando las directrices del Instituto Joanna Briggs. Dos revisores independientes examinaron y evaluaron los estudios, extrajeron datos y elaboraron categorías y síntesis temáticas. En total, 13 estudios cumplieron con los criterios de inclusión y exclusión. Se elaboraron cinco síntesis: importancia de las relaciones; importancia de los procedimientos durante el tratamiento; respuestas emocionales positivas al tratamiento; respuestas emocionales negativas al tratamiento; y preguntas sobre el equipo de salud y los servicios de salud. Todas las cinco síntesis mostraron una alta confiabilidad; dos síntesis presentaron alta credibilidad; y tres presentaron una credibilidad moderada. Profesionales de salud mental, familiares y usuarios presentaron percepciones convergentes sobre la intervención en crisis brindada en los servicios de salud. Es fundamental comprender las percepciones de los usuarios para mejorar su atención y experiencia en esta situación vulnerable.
Palabras-clave:
Salud Mental; Intervención en la Crisis; Niño; Adolescente; Percepción
Introduction
Data from the World Health Organization (WHO) reveal that approximately 8% of children aged 5 to 9 years and 14% of adolescents have a mental health problem that persists into adulthood in 50% of cases if inadequately treated 11. World Health Organization. World mental health report: transforming mental health for all. Geneva: World Health Organization; 2022.. This represents around 86 million adolescents aged 15 to 19 and 80 million aged 10 to 14 22. United Nations Children's Fund. The State of the World's Children 2021. On my mind - promoting, protecting and caring for children's mental health. New York: United Nations Children's Fund; 2021.. Despite this, investments intended to public policies for child and adolescent mental health care are still incipient worldwide 33. World Health Organization. Mental Health ATLAS 2017. https://www.who.int/publications/i/item/9789241514019 (accessed on 26/Jan/2023).
https://www.who.int/publications/i/item/... .
Care in this field is complex and, thus, must be carried out in conjunction with various knowledge. This leads the care team to be composed of professionals from multiple areas to favor the aggregation of different perspectives 44. Reder P. Interprofessional collaboration: from policy to practice in health and social care. Child Adolesc Ment Health 2005; 10:48.,55. Odegård A, Bjørkly S. The family as partner in child mental health care: problem perceptions and challenges to collaboration. J Can Acad Child Adolesc Psychiatry 2012; 21:98-104.. In this sense, it is important that these professionals are heard and that their perceptions concerning daily practices are considered to achieve a better quality of care 66. Hannawa AF, Wu AW, Kolyada A, Potemkina A, Donaldson LJ. The aspects of healthcare quality that are important to health professionals and patients: a qualitative study. Patient Educ Couns 2022; 105:1561-70..
Family members are essential in the support network for people with mental health problems, especially in the community care model. It is crucial to consider their experiences, demands, and needs 77. Stuart R, Akther SF, Machin K, Persaud K, Simpson A, Johnson S, et al. Carers' experiences of involuntary admission under mental health legislation: systematic review and qualitative meta-synthesis. BJPsych Open 2020; 6:e19.. Moreover, valuing the perspective of children and adolescents is crucial, as their experiences indicate their understanding of health and the quality of care received 88. Oben P. Understanding the patient experience: a conceptual framework. J Patient Exp 2020; 7:906-10..
People with mental health problems may face crises, which are moments of vulnerability 99. Jardim K, Dimenstein M. Risk and crisis: thinking about psychiatric urgency. Psicol Rev (Belo Horizonte) 2007; 13:169-90.. To better understand these crises, studies focus on the perceptions of those involved: professionals, family members, and users 1010. Foster AA, Sundberg M, Williams DN, Li J. Emergency department staff perceptions about the care of children with mental health conditions. Gen Hosp Psychiatry 2021; 73:78-83.,1111. Hartley S, Redmond T, Berry K. Therapeutic relationships within child and adolescent mental health inpatient services: a qualitative exploration of the experiences of young people, family members and nursing staff. PLoS One 2022; 17:e0262070.,1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,1313. Santos IM, Silveira BV, Moura AAM, Pillon SC. Percepção da família acerca do suporte profissional recebido em um serviço de saúde mental infanto-juvenil. Revista Família, Ciclos de Vida e Saúde no Contexto Social 2020; 8:512-23.,1414. Montreuil M, Thibeault C, McHarg L, Carnevale FA. Moral experiences of crisis management in a child mental health setting: a participatory hermeneutic ethnographic study. Cult Med Psychiatry 2020; 44:80-109.,1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.. Generally, mental health crises are treated in long-stays hospitals for a punctual moment or via community services, in which longitudinal care articulated to the user’s environment is achievable 11. World Health Organization. World mental health report: transforming mental health for all. Geneva: World Health Organization; 2022.,1616. World Health Organization. Hospital-based mental health services: promoting person-centred and rights-based approaches. Geneva: World Health Organization; 2021.. Understanding these two methods of care and listening to those affected is essential.
We highlight that a preliminary search was conducted in PROSPERO (International Prospective Register of Systematic Reviews), MEDLINE, Cochrane Database of Systematic Reviews, and JBI Evidence Synthesis databases and no records of systematic reviews like this were found. This review aimed to identify and synthesize the perceptions of mental health professionals, family members, and users regarding the interventions carried out in crisis situations involving children and adolescents at hospitals and community mental health services.
Method
Design
This qualitative systematic review was conducted following the Joanna Briggs Institute (JBI) methodological guidelines 1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... . The systematic review design was chosen since it enabled reaching a question of relevance that should be asked and answered via primary studies by identifying and synthesizing these findings 1818. Alexander PA. Methodological guidance paper: the art and science of quality systematic reviews. Rev Educ Res 2020; 90:6-23..
This review was registered on the PROSPERO (CRD42022374822) and the review protocol was published elsewhere 1919. Telles NN, Cruz NS, Cardoso MMA, Fernandes HGC, Oliveira MAF. Perceptions about children's and adolescents' mental health crisis interventions: a qualitative systematic review protocol. Res Soc Dev 2023; 12:e9212842914..
Review question, eligibility criteria, and search strategy
The review question was developed following the PICo strategy, in which P refers to population: mental healthcare professionals, family members, and users; I refers to interest phenomena: perceptions about children and adolescents’ mental health crisis intervention; and C refers to the context: hospitals and community mental health services. This led to the question: “what are the perceptions of mental healthcare professionals, family members, and users about children and adolescents’ mental health crisis intervention at hospitals and community mental health services?”.
Eligibility criteria included primary qualitative studies, fully available in Portuguese, English, or Spanish, in which the target care population was children and/or adolescents, considering adolescents as people up to 19 years old 2020. World Health Organization. Child and adolescent mental health policies and plans. https://iris.who.int/bitstream/handle/10665/43068/9241546573.pdf (accessed on 29/Sep/2022).
https://iris.who.int/bitstream/handle/10... . Studies that presented adults in the sample were excluded, as well as studies exclusively about children and adolescents who declared consuming alcohol and/or other drugs. No temporal delimitation or specific study designs were determined.
Via the keywords that make up the review question, the descriptors used in the Medical Subject Headings (MeSH), Emtree, and Health Sciences Descriptors (DeCS, acronym in Portuguese) were selected. The Boolean operators OR and AND were used to combine descriptors in each database and the “advanced search” tool was used in the databases. The Supplementary Material (Box S1; https://cadernos.ensp.fiocruz.br/static//arquivo/suppl-e00016324_6066.pdf) shows the search strategy employed in each database.
Study search and selection
The search was conducted by two independent reviewers in December 2022 in 15 databases: Embase, Scopus, Web of Science, Cummulative Index to Nursing & Allied Health Literature (CINAHL) via EBSCO, PubMed, Virtual Health Library (VHL), PsycInfo, and Cochrane Central Register of Controlled Trials (CENTRAL). To identify grey literature, a search was conducted in the portals Brazilian Digital Library of Theses and Dissertations (BDTD, acronym in Portuguese), CAPES Thesis and Dissertations Database, DART-Europe E-theses Portal (DART-E), Cybertesis, Google Scholar, Open Access Theses and Dissertation (OATD), Database of African Theses and Dissertations, and ProQuest. Additionally, citation search was conducted.
The retrieved studies were imported to EndNote (http://www.endnote.com/) to remove duplicate studies and, in the next step, studies underwent initial selection by two independent reviewers using the Rayyan software (https://www.rayyan.ai/) 2121. Ouzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan-a web and mobile app for systematic reviews. Syst Rev 2016; 5:210.. Selection conflicts were solved by consulting a third reviewer. After fully reading the selected studies, the process was documented in the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) 2020 flowchart 2222. Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ 2021; 372:n71..
Methodological quality of the studies and data analysis
The final sample was characterized and methodologically assessed following the JBI guidelines 2323. Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. Int J Evid Based Healthc 2015; 13:179-87.,2424. Munn Z, Aromataris E, Tufanaru C, Stern C, Porritt K, Farrow J, et al. The development of software to support multiple systematic review types: the Joanna Briggs Institute System for the Unified Management, Assessment and Review of Information (JBI SUMARI). Int J Evid Based Healthc 2019; 17:36-43..
In the following step, findings and illustrations were selected and grouped into categories following the JBI meta-aggregation method 1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... , classifying them as “unequivocal”, “credible”, or “not supported” based on the JBI Credibility Levels 2525. Aromataris E, Munn Z. JBI manual for evidence synthesis. https://synthesismanual.jbi.global/ (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global/... . Only findings classified as “unequivocal” or “credible” were included in the final review. This process resulted in a comprehensive set of findings presented in the form of a descriptive synthesis.
The studies were assessed independently by two reviewers using the JBI Critical Appraisal Skills Program Qualitative Research Checklist1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... . This process was conducted in the SUMARI software (https://sumari.jbi.global/) 2424. Munn Z, Aromataris E, Tufanaru C, Stern C, Porritt K, Farrow J, et al. The development of software to support multiple systematic review types: the Joanna Briggs Institute System for the Unified Management, Assessment and Review of Information (JBI SUMARI). Int J Evid Based Healthc 2019; 17:36-43., and all studies were included regardless of the answers to each question on the instrument. The result of this step was used to support the ConQual framework in the summary of findings, the discussion stage, and the limitations of this review. To assess the confidence of the synthesized qualitative findings, they were classified following the ConQual approach 2525. Aromataris E, Munn Z. JBI manual for evidence synthesis. https://synthesismanual.jbi.global/ (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global/... , classifying the studies as high, moderate, low, and very low. Dependability is based on the first five questions of the instrument related to research adequacy. The classification varies on the “yes” responses: (i) 4 to 5, the paper remains unchanged; (ii) 2 to 3, moves down one level; and (iii) 0 to 1, moves down two levels. The credibility is scored as unequivocal (U), credible (C), or not supported (NS), based on the combination of the findings.
Finally, the categories were grouped to synthesize the evidence found, and the ConQual approach was used to assess studies 1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... . The recommendations were formulated based on the syntheses and were also assessed according to the JBI guidelines 2525. Aromataris E, Munn Z. JBI manual for evidence synthesis. https://synthesismanual.jbi.global/ (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global/... .
Results
In total, 3.527 studies were retrieved. From these, 833 were excluded as duplicates, and 2.694 studies were sent to read the titles and abstracts by two independent reviewers, resulting in 40 studies receiving full reading. At this step, five studies were excluded due to not meeting the population criteria, six due to context, nine due to not presenting the perceptions of people involved in the mental health care of children and adolescents, and seven due to not presenting the speech of study participants. In the end, 13 studies were included 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., as presented in the flow diagram PRISMA (Figure 1).
Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) diagram of the study selection process.
Out of the 13 analyzed studies in this review, only one was published before 2011 3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., eight were published from 2011 to 2019 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76. and four were published from 2020 to 2022 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815.. Geographically, studies covered all continents except Africa, with the most conducted in America 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., followed by Oceania 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., Europe 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7., and Asia 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.. Most studies focused on adolescent users as participants 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., excluding children. Some studies interviewed exclusively the health staff, but some combined interviews with the health staff and family members 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.. Studies were predominantly (77%) conducted in hospital inpatient units 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., and the study samples varied from five to 82 participants. Box 1 shows the details about the features of the included studies.
Studies methodological quality
Regarding methodological quality, no study presented less than 80% quality. Thus, this review presents a high degree of reliability, according to the JBI ConQual method 1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... , in all syntheses prepared. Box 2 details information on the methodological quality of each study.
Categories and syntheses
Following the JBI methodology for qualitative systematic reviews 1717. Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: Systematic reviews of qualitative evidence. In: Aromataris E, Porritt K, Pilla B, Jordan Z, editors. JBI manual for evidence synthesis. https://synthesismanual.jbi.global (accessed on 01/Feb/2023).
https://synthesismanual.jbi.global... , 169 findings and illustrations were found. All of them are available in the Supplementary Material (Box S2; https://cadernos.ensp.fiocruz.br/static//arquivo/suppl-e00016324_6066.pdf). Almost a third of the findings (53) are about procedures; another 37 findings referred to the importance of relationships during crisis intervention; 37 were about the positive emotional responses to treatment; and 28 were about the negative emotional responses to treatment . Finally, 14 findings showed the perceptions of users, family members, and staff about the difficulties and strengths of child and adolescent mental health staff and services. All these findings were grouped into 29 categories, and five syntheses of evidence, as shown in Box 3.
A large numerical difference between hospital services (n = 10) and community services (n = 3) was found in the sample, hindering the comparison betweeen the models of care in each type of service, as many categories were created based on the findings only from studies on hospital services due to greater data availability in absolute numbers. However, it is noteworthy that despite this difference, out of the 29 categories, 12 were formed by findings from studies on both services (individual therapy; family support; personalized treatment; communication between staff, family members, and users; relationship between family members and health services; coping skills; psychotropic medication; family intervention; restraint; acceptance; adolescents’ decision-making; emergency as mental health service) and two were made up exclusively by findings from studies of community services (family role during treatment; community mental health service treatment).
Following, the five syntheses will be presented together with the categories that were grouped for their formation.
Synthesis 1 - Importance of relationship during treatment
Relationships were relevant aspects of treatment, regardless of whether they were evaluated as positive or negative. Family members emphasized the importance and need to also be taken care of so that they can help and improve the care and relationship with their children.
Regarding “relationships with peers” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., adolescents valued sharing care experiences, feeling validation, belonging, and support. Few reported negative experiences, highlighting the importance of peers.
“It’s the other kids that make it work; that gives you hope” 3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76. (p. 573).
Regarding “relationships with health staff” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., adolescents considered the staff as essential in mental healthcare, feeling supported and listened to. The staff was seen as a substitute family, but some attitudes were perceived negatively, as unfair or invasive, and a strong attachment to the staff made it difficult to return home.
“You can talk to them about anything, and, like, they didn’t judge you about it” 3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37. (p. 126).
Regarding “family support” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., family members reported the desire to be advised on how to deal with their children’s behavior. Crises revealed strengths and weaknesses that some families had. A good assessment was found for family members who were monitored by the reference professional in their children's case.
“I couldn’t handle my kids, finances, housework, cooking, shopping... I couldn’t take care of anything. [Case management] pretty much was the only thing holding my family together” 3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20. (p. 617).
Regarding “communication between staff, family members, and users” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., family members complained about the lack of information at different times during their children’s treatment, which hindered aiding and contributing to the adolescents’ care, as well as better understanding their child’s condition and taking more effective care actions. The staff, on the other hand, felt less confident and had difficulty communicating effectively with family members. Adolescents reported communication as a positive aspect when they were able to name what they felt and the meaning of their condition. They understood communication as something negative when they found themselves in an unfamiliar place and did not have enough information during hospitalization.
“I mean, I didn’t even know where I was, and then I was expected to just go to sleep and speak to someone in the morning. I thought someone would have explained more then. I didn’t even know who it was in the other bed; it was weird” 3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76. (p. 574).
Regarding “family role during treatment” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018., family members emphasized their supportive role with their children during treatment and adolescents understood the importance of this, which provided feelings of security and trust. Family members also sought out professionals and communicated with them what they considered to be appropriated for treatment and measures for their children.
“...to talk about what helped me the most... I think about my mother a lot. Because when I told her about what was happening, she really understood me and tried to help me... she didn't judge me...” 3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018. (p. 6).
Synthesis 2 - Importance of procedures during treatment
Most procedures had good results from the perspective of those involved.
Regarding “individual therapy” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., both family members and users perceived less access than necessary, and the users said they preferred individual interventions to collective interventions.
“I wasn’t getting very much one-to-one time, which was important to me and I know it was important to other people there too” 3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37. (p. 131).
Regarding “group therapy” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., adolescents’ perceptions were divided. Some referred to the groups as uncomfortable and inefficient spaces. They also felt that staff were too passive and analytical in this context and described groups as unsafe places to share information. However, some adolescents had opposite perceptions and perceived the groups as one of the aspects that helped most during hospitalization, understanding the space as powerful for their care. It is noteworthy that this category was created only with findings from studies carried out in hospital services, which provides a snapshot of adolescents’ opinions only related to group therapy in this specific setting.
“Group was just good ‘cause we all, like, opened up. And a lot of people ended up crying. And we just, like, got through, like, what happened to us. And, like, it just, it was kind of, like, a relief to get it off your chest and, like, finally open up to somebody that, like, as open as we were” 3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37. (p. 127).
Regarding “personalized treatment” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., family members asked for personalized care for their children, so that it was effective and meaningful. Adolescents also wanted specific answers to their needs.
“We often experience that they try to use one success story and put it on a second child without asking. Observe, explore what’s right for them. It is time-consuming and more expensive, but you get poor results if you do hasty work” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003. (p. 1000).
Regarding “power of music therapy” 3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40., music therapy was perceived as a positive intervention during hospitalization by users and the team. Most users perceived the strategy as a good way to communicate their feelings.
“Coming out of [music therapy], I felt like the voices in my head were gone. I wanted to feel better and I came out of there with a purpose, knowing that things like that were going to help me in my journey” 3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40. (p. 136).
Regarding “psychotropic medication” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018., few adolescents identified it as the most important benefit of hospitalization. In community mental health services, medication use was highlighted as a strategy for crisis situations. Staff also discussed with adolescents about the continuation and whether or not it was necessary in their treatment.
“I keep going [to the Psychosocial Care Center], but I don’t think I need medication... I think I take too much medication, it makes me very sleepy...” 3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018. (p. 7).
Regarding “family intervention” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., both family members and adolescents consider this type of care to be important and strategic. However, some adolescents reported that the family interventions were of little use. They also mentioned feeling unheard and perceived that the professionals were against them and in favor of the family members.
“It has been a long process to understand what the disease entails. I feel that being part of a family group helped to get some of those answers. Together with other families in the same or similar situations, we could share experiences” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003. (p. 1000).
Regarding “restraint” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., some adolescents reported as a positive fact that they had limited physical space in the hospital - such as their own room or the hospital wing -, as it offered them the opportunity to be cared for by others, thus not having to worry about having to take care of themselves. However, adolescents also reported being scared when they saw peers being physically or mechanically restrained by staff. Family members realized that community services used restraint only in cases of extreme need for crisis intervention and emphasized that this strategy also causes distress to families.
“Once, he cut glass with his hands and got very upset, they took him to a room and held him, the technician said ‘You can go away, he’ll be fine, we’ll talk to him!’ I left, but on the other side of the street I heard his screams. That day I left very depressed. So, I called and she said ‘He’s fine now! He’s playing and he has already eaten! He’s no longer in crisis’” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27. (p. 14).
Regarding “community mental health service treatment” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27., professionals and family members reported that specific strategies, such as daytime hospitality and user embracement, were important in managing crisis situations.
“They helped me a lot... he stayed here, they took care of him and gave him a lot of attention” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27. (p. 9).
Synthesis 3 - Negative emotional responses to treatment
For adolescents, hospitalization triggered negative feelings related to the distance from everyday life, hospital rules and third parties’ perception of their mental condition.
Regarding “stigma” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., before hospitalization, adolescents had stigmatized views on mental health but this perception changed after the experience. Adolescents feared facing stigma and deteriorating friendships after discharge.
“Like, ‘cause it’s called a mental hospital and that kinda makes you feel like if you’re there, you must be mental, you must be” 3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37. (p. 132).
Regarding “lack of privacy” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., users complained about the lack of privacy and restriction of personal freedom during hospitalization as they perceived the team to be very invasive at times.
“No one has time to spend alone, because as you can see all these doors are locked. You can’t go into your bedroom... the only place you could possibly have all by yourself is the loo” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65. (p. 60).
Regarding “exclusion of daily life” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., adolescents reported that during their hospitalization they felt as if they were in a parallel reality, an environment extremely different from home or the outside world. The inpatient unit was seen as an interruption to everyday life, which caused them to miss important events and valuable aspects of their lives. They also reported that participating in everyday activities, even within the hospital, was important to recreate a familiar reality in an unfamiliar context. At the same time, having time to reflect on their issues and life circumstances without the daily pressures of home was a useful aspect of the brief hospitalization for them.
“It’s frustrating being locked up, being restricted to a lot of things... missing out on life, not experiencing what a normal teenager should experience” 3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815. (p. 8).
Regarding “hospital routine” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37., adolescents complained about having to follow it, being forced to participate in scheduled activities and not being able to choose what to do. For them, restrictions on verbal and physical contact with other adolescents were particularly difficult, as these interactions were seen as comforting and with the potential for care. However, the users also said that having a routine was important to create inner peace and distract from their issues.
“I got quite violent, um towards the staff because I saw them as keeping me prisoner, keeping me prisoner inside this place... I just felt really hostile towards the staff for keeping me here, for locking me in” 2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7. (p. 152).
Regarding “distance from beloved ones” 2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37., adolescents expressed feelings of isolation, loneliness, stress, and anxiety due to being away from home and disconnected from family and friends.
“Every single day my sister is asking for me to come and see her, but she just doesn’t realize I can’t come see her... I was the man of the family, the very time the family needed me I was locked up” 2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7. (p. 152).
Regarding “fear of returning to the inpatient unit” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62., users referred that coming back to inpatient unit would mean a personal failure.
“Back to square one” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65. (p. 62).
Synthesis 4 - Positive emotional responses to treatment
Adolescents experienced positive feelings of self-knowledge, plans and autonomy in self- care.
Regarding “coping skills” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018., it was shown that, in crisis situations caused by despair, anguish, inferiority, and abandonment, adolescents had difficulty developing coping strategies and placed themselves in risky situations. During treatment, the adolescents reported that they were able to better understand their difficulties and create cognitive and behavioral strategies to deal with critical situations.
“All these little things all kind of add up to one big change... I feel like I've been transformed in a way, like upgraded to a new me” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65. (p. 61).
Regarding “discharge planning” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., the adolescents spoke about the importance of having a transition between hospitalization and returning home, before being discharged. They reported that, after discharge, they knew they needed a support network, and continuity in mental health care and expressed the desire to be seen as “normal” by others. Thinking positive and knowing that they could resume what they had to pause during hospitalization helped them while they were hospitalized.
“Maybe during that time I would try having some leave, see if it’s ok, then have more leave, go see some friends, do what I do normally, maybe stay overnight and then go after that” 3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76. (p. 574).
Regarding “acceptance” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., it was presented that accepting your mental health issue and accepting help was a debated subject by adolescents.
“I dunno if I was hoping it would happen, I just, well, I just wanted to feel better and I needed help, so yeah, I guess it was alright” 3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76. (p. 571).
Regarding “adolescents’ decision-making” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., the adolescents mentioned their desire to be listened to about their treatment and reported several situations in which they were not listened to or did not have their wishes respected. Users and family members said that, without being committed to the treatment, the interventions would not be effective. The treatment provided them an opportunity to be more responsible about their lives. Family members also spoke about the dilemma of how to empower their children in this process. This category included findings from one study in community services and the others in hospital services, which may be related to the struggle of adolescents to be heard and participate in the process.
“I would definitely have appreciated being included more. Maybe asked; I mean, I don’t really know how to fix the problem, I just know that I didn’t appreciate being told what to do and not being included” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3. (p. 3).
Regarding “treatment outcomes” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., several family members noticed behavioral changes in their children and thought this was due to the treatment. The adolescents reported important improvements, such as being calmer, more confident, and healthier, but they realized that they still had difficulties and planned to improve little by little. Some adolescents said they were angry and disappointed because they thought they were discharged before they were ready.
“I feel significantly more confident than I did before coming in here. I still feel emotional, sad, and anxious but I feel like I’ve learned a lot of things and lessons here that over time I will be applying that will help me as an individual just cool off and be a generally healthier person” 3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815. (p. 10).
Regarding “sense of security” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37., adolescents reported about feeling safe during hospitalization but some said that this could also be a negative aspect since this does not happen in the real world, where there are difficulties and they are not prepared. Some users said they were anxious and scared in the hospital environment.
“We’re being watched quite a lot of the time... I think it’s quite good because I don’t have a chance to hurt myself and I know I’m safe” 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65. (p. 61).
Synthesis 5 - Issues about health staff and health services
Mental health professionals and health services were assessed as lacking in some aspects of care, and improvements were highlighted by the staff, users, and family members.
Regarding “improvement of labor process”, professionals suggested increasing the staff and optimizing the division of labor. They also spoke about the need for supervision and training to deal with some mental health problems, such as adolescents attempting suicide.
“We do not have much time to communicate with patients and solve some of their psychological problems. Understaffing is a factor, and the second may be the division of labor is not optimized...” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62. (p. 5).
Regarding the “relationship between family members and health services” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., several parents reported that they had to coordinate services for their children’s care. They also complained about barriers to accessing mental healthcare services and the lack of communication between services. On the other hand, some reported trusting and having a good relationship with the services. Adolescents said mental health services are part of their support network.
“We had to be the mediator between them (different healthcare services) on things they ought to know. It is silly because it takes a lot of energy, and it has taken a long time for us to understand the system. Who is responsible, and who should take the initiative? In the end, we have to do it” 2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003. (p. 1000).
Regarding “emergency as mental health service” 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20., family members reported difficulties in getting support in emergency units when their children were in crisis and talked about the delay and bureaucracy in the process of admission to the service.
“We were [at the hospital ER] for like about an hour and a half before [the screener] even showed up because nobody had informed him that we were there yet. Since we had to go through the emergency room, there was a long wait in the emergency room. We went up there at, it was between 8:00 and 9:00 a.m. And we didn’t get out of there until about 2:00 or 3:00 in the afternoon” 3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20. (p. 617).
Regarding “assessment of the staff” 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62., adolescents perceived the team as unprepared to deal with mental health problems. Professionals said they had low expectations about what they could do and that working with adolescents with suicidal behavior requires some personal characteristics, such as patience and communication, and they need certain professional skills to be trained.
“We have to learn communication skills, and the learn some psychological counseling methods to empathize with patients, which is very difficult to learn...” 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62. (p. 4).
Due to the high methodological quality of the studies, the dependability of the syntheses was also classified as high. The credibility of the syntheses varied from high to moderate, depending on the assessment of the findings and illustrations. It means that most of the findings were considered unequivocal (findings accompanied by an illustration that is beyond reasonable doubt and thus not open to challenge) and credible (findings accompanied by an illustration lacking clear association with it and therefore open to challenge).
Discussion
Importance of relationships during treatment
Interpersonal relationships are fundamental to the support and mental health of children and adolescents 3737. Chu PS, Saucier DA, Hafner E. Meta-analysis of the relationships between social support and well-being in children and adolescents. J Soc Clin Psychol 2010; 29:624-45.. Considering these benefits, the Pan American Health Organization (PAHO) has encouraged the use of “peer support” as a powerful tool for care, rapprochement, and support in mental health services 3838. Organização Pan-Americana da Saúde. Serviços de suporte de pares em saúde mental. Promoção de abordagens centradas na pessoa e baseadas em direitos. Brasília: Organização Pan-Americana da Saúde; 2021.. Peer support considers that the meeting between people who are going through or have gone through similar situations promotes understanding, exchange of experiences, and acceptance of the suffering experienced without judgment 3939. Hameed Shalaby RA, Agyapong VIO. Peer support in mental health: literature review. JMIR Mental Health 2020; 7:e15572.,4040. Butler N, Quigg Z, Bates R, Jones L, Ashworth E, Gowland S, et al. The contributing role of family, school, and peer supportive relationships in protecting the mental wellbeing of children and adolescents. School Ment Health 2022; 14:776-88..
In addition to peer support, relationships between users and staff, inherent to mental health care, and the care of children and adolescents during times of crisis, also play an important role during the care process. A good relationship between health professionals and users favors the achievement of faster, more efficient results and a better prognosis 4141. Moreno-Poyato AR, Rodríguez-Nogueira O; MiRTCIME.CAT Working Group. The association between empathy and the nurse-patient therapeutic relationship in mental health units: a cross-sectional study. J Psychiatr Ment Health Nurs 2021; 28:335-43.. For mental health staff, establishing and maintaining good communication with family members and users is essential, as it directly impacts treatment 4242. Bolsinger J, Jaeger M, Hoff P, Theodoridou A. Challenges and opportunities in building and maintaining a good therapeutic relationship in acute psychiatric settings: a narrative review. Front Psychiatry 2020; 10:965.. However, it can be a challenge, as the complexity of cases, including crisis situations, shows an emotional impact on these professionals, which can cause intense strain on these relationships 4343. Luz PO, Souza AA, Boska GA, Cardoso MMA, Candido BP, Oliveira MAF. Nursing experiences in specialized services in child and adolescent mental health: a systematic review of qualitative studies. Rev Bras Enferm 2023; 76 Suppl 2:8-14.. As a result, users may feel that they are not being heard or welcomed 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815., at the same time that the team itself may experience difficulty establishing a good relationship with adequate communication 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20.,4141. Moreno-Poyato AR, Rodríguez-Nogueira O; MiRTCIME.CAT Working Group. The association between empathy and the nurse-patient therapeutic relationship in mental health units: a cross-sectional study. J Psychiatr Ment Health Nurs 2021; 28:335-43..
As for the family, they may feel that they lack information to better care for their child or adolescent and feel helpless 3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20.,4444. Bowden CF, Simmel C, Mendez A, Yu M, Neese-Todd S, Crystal S. The complexity of psychotropic medication prescription and treating trauma among youth in foster care: perspectives from the lived experience. Adm Policy Ment Health 2022; 49:821-33.. Therefore, it is common for family members to feel disoriented and, as a result, ask for more support and guidance to know what to do and how to act with their children who are in this period of more intensive care 1313. Santos IM, Silveira BV, Moura AAM, Pillon SC. Percepção da família acerca do suporte profissional recebido em um serviço de saúde mental infanto-juvenil. Revista Família, Ciclos de Vida e Saúde no Contexto Social 2020; 8:512-23.,2626. Bjønness S, Grønnestad T, Johannessen JO, Storm M. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare. Health Expect 2022; 25:994-1003.,2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20.. A study showed that family members’ capacity to seek and feel capable of care intensifies once both family members and users understand and value the relevant support role that the family has during the care process 4545. Waid J, Kelly M. Supporting family engagement with child and adolescent mental health services: a scoping review. Health Soc Care Community 2020; 28:1333-42..
Importance of procedures during treatment
Relationships in the care process occur via casual, individual, or group meetings. According to Lima et al. 4646. Lima ICS, Cavalcante ASP, Brandão IBS, Sampaio JJC. A promoção da saúde mental do adolescente: uma reflexão teórica sobre os diálogos terapêuticos individuais e coletivos. In: Silva PF, editor. Saúde biopsicossocial: cuidado, acolhimento e valorização da vida. Guarujá: Editora Científica Digital; 2022. p. 27-39., the space for individual therapeutic care, combined with the bond between user and professional, creates an environment conducive to expressing feelings and experiences, including those that led to the crisis. Group therapy is also valued for the exchange of similar experiences, especially in crises 4646. Lima ICS, Cavalcante ASP, Brandão IBS, Sampaio JJC. A promoção da saúde mental do adolescente: uma reflexão teórica sobre os diálogos terapêuticos individuais e coletivos. In: Silva PF, editor. Saúde biopsicossocial: cuidado, acolhimento e valorização da vida. Guarujá: Editora Científica Digital; 2022. p. 27-39.,4747. Menezes ES, Kantorski LP, Couto MLO, Ramos CI. Grupo de adolescentes em serviços de saúde mental: uma ferramenta de reabilitação psicossocial. Vínculo 2020; 17:118-40.. Personalized treatment, respecting the uniqueness of each individual, is fundamental in mental health services, such as in Psychosocial Care Centers, with the Singular Therapeutic Project (STP) 4848. Ministério da Saúde. Atenção psicossocial a crianças e adolescentes no SUS: tecendo redes para garantir direitos. Brasília: Ministério da Saúde; 2014.. STP enables planning the treatment considering individual experiences, aligning and comanaging the development of care between mental healthcare professionals, users, and family members 4949. Depole BF, Marcolino TQ, Oliveira GN, Cunha GT, Ferigato SH. Projeto Terapêutico Singular: Uma visão panorâmica de sua expressão na produção científica brasileira. Cadernos Brasileiros de Saúde Mental 2022; 14:1-25., which are reevaluated in a crisis situation.
Family support is essential, with an emphasis on listening and welcoming, especially during crises, to identify difficulties and potentialities in family dynamics, which can be both support and triggering factors for crises. This approach expands the assessment of the crisis, identifying the care needed also in family members 1313. Santos IM, Silveira BV, Moura AAM, Pillon SC. Percepção da família acerca do suporte profissional recebido em um serviço de saúde mental infanto-juvenil. Revista Família, Ciclos de Vida e Saúde no Contexto Social 2020; 8:512-23.,4646. Lima ICS, Cavalcante ASP, Brandão IBS, Sampaio JJC. A promoção da saúde mental do adolescente: uma reflexão teórica sobre os diálogos terapêuticos individuais e coletivos. In: Silva PF, editor. Saúde biopsicossocial: cuidado, acolhimento e valorização da vida. Guarujá: Editora Científica Digital; 2022. p. 27-39..
In addition to the care provided via relationships, the use of psychiatric medications is commonly employed to deal with crises. However, studies reveal that the numbers referring to the use of psychiatric medication by children and adolescents are increasing worldwide 5050. Barczyk ZA, Rucklidge JJ, Eggleston M, Mulder RT. Psychotropic medication prescription rates and trends for New Zealand children and adolescents 2008-2016. J Child Adolesc Psychopharmacol 2020; 30:87-96.,5151. Klau J, Bernardo CDO, Gonzalez-Chica DA, Raven M, Jureidini J. Trends in prescription of psychotropic medications to children and adolescents in Australian primary care from 2011 to 2018. Aust N Z J Psychiatry 2022; 56:1477-90.,5252. Conselho Nacional de Saúde. Recomendação nº 019, de 08 de outubro de 2015. https://www.gov.br/conselho-nacional-de-saude/pt-br/acesso-a-informacao/legislacao/recomendacoes/2015/recomendacao-no-019.pdf/view (accessed on 05/Jun/2023).
https://www.gov.br/conselho-nacional-de-... . This can be explained by the current trivialization of psychiatric diagnoses in childhood and adolescence 5353. Alves FCC, Brandão MBF, Bacelar Júnior AJ. A medicalização da infância na contemporaneidade: revisão integrativa. Mental (Barbacena) 2021; 13:1-24., despite no evidence being found on the safety and effectiveness of this use in these age groups 5353. Alves FCC, Brandão MBF, Bacelar Júnior AJ. A medicalização da infância na contemporaneidade: revisão integrativa. Mental (Barbacena) 2021; 13:1-24.,5454. Freitas F, Azevedo LJC. Medicalizando crianças e adolescentes. Estudos de Sociologia 2022; 27(n.esp. 2):e022022.. At the same time, studies point to the negative effects on the global development of children, including socioemotional development 5555. Franco AF, Tabuti E, Tuleski SC. Associação de medicamentos controlados em crianças: impactos para o desenvolvimento do psiquismo. Psicol Esc Educ 2021; 25:e226575.,5656. Whitaker R. Medicating preschoolers for ADHD: how "evidence-based" psychiatry has led to a tragic end. Mad in America 2022; 19 feb. https://www.madinamerica.com/2022/02/medicating-preschoolers-for-adhd-leads-to-tragic-end/.
https://www.madinamerica.com/2022/02/med... ,5757. Secco AC, Tesser CD. Revisitando Whitaker: psicofármacos e cuidado em saúde mental na atenção primária à saúde. Saúde Debate 2023; 47:941-56..
Several strategies can be used in crisis care and intervention in mental health services, such as music therapy 3131. Patterson S, Duhig M, Darbyshire C, Counsel R, Higgins NS, Williams I. Implementing music therapy on an adolescent inpatient unit: a mixed-methods evaluation of acceptability, experience of participation and perceived impact. Australas Psychiatry 2015; 23:556-60.,3232. Rosado A. Adolescents' experiences of music therapy in an inpatient crisis stabilization unit. Music Ther Perspect 2019; 37:133-40.,5858. Costa MHBO, Zanini CRO. A musicoterapia no tratamento de adolescentes automutiladores. Brazilian Journal of Music Therapy 2022; (30):39-58., bodily activities 5959. Pessanha JHS, Caetano LB, Saint'Clair EM. Transtornos mentais, práticas corporais e educação física. Conexões 2023; 20:e022045., and restraint. The latter, according to Moura & Matsukura 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27., keeps on being a procedure mentioned by family members and mental health staff for crisis intervention in community mental health services for children and adolescents in Brazil as the last possible option to deal with a crisis. However, the use of restraint, especially physical, mechanical, or chemical, is still quite controversial. Perers et al. 6060. Perers C, Bäckström B, Johansson BA, Rask O. Methods and strategies for reducing seclusion and restraint in child and adolescent psychiatric inpatient care. Psychiatr Q 2022; 93:107-36. emphasizes that several strategies can be used as alternatives to the use of restraint, such as child-centered initiatives and behavioral management strategies. In addition to being very well evaluated, they should be prioritized in the mental health care of children and adolescents as child- and family-centered care initiatives 6060. Perers C, Bäckström B, Johansson BA, Rask O. Methods and strategies for reducing seclusion and restraint in child and adolescent psychiatric inpatient care. Psychiatr Q 2022; 93:107-36..
Positive and negative emotional responses to treatment
Mental health crises are marked by high fragility and suffering 6161. Dell'Acqua G, Mezzina R. Resposta à crise. In: Delgado J, editor. A loucura na sala de jantar. São Paulo: Editora Resenha; 1991. p. 53-79.. During treatment, adolescents recognize positive factors and develop coping strategies, benefiting from environments that promote decision-making and protagonism 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3333. Rossi LM, Marcolino TQ, Speranza M, Cid MFB. Crise e saúde mental na adolescência: a história sob a ótica de quem vive. Cad Saúde Pública 2019; 35:e00125018.,6262. Braga CP, d'Oliveira AFPL. Políticas públicas na atenção à saúde mental de crianças e adolescentes: percurso histórico e caminhos de participação. Ciênc Saúde Colet 2019; 24:401-10.. They notice improvements in calmness and abilities to deal with difficulties, plan for discharge, and return to routine 2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,6363. Rodrigues TAS, Rodrigues LPS, Cardoso AMR. Adolescentes usuários de serviço de saúde mental: avaliação da percepção de melhora com o tratamento. J Bras Psiquiatr 2020; 69:103-10.,6464. Piedade CT, Batista IAJF, Rosas Cardoso AM. Percepção de melhora de adolescentes atendidos em um serviço de saúde mental infanto-juvenil. Comun Ciênc Saúde 2021; 32:89-98..
However, treatment still faces the stigma of mental illness 22. United Nations Children's Fund. The State of the World's Children 2021. On my mind - promoting, protecting and caring for children's mental health. New York: United Nations Children's Fund; 2021.,6565. Kaushik A, Papachristou E, Telesia L, Dima D, Fewings S, Kostaki E, et al. Experience of stigmatization in children receiving inpatient and outpatient mental health treatment: a longitudinal study. Eur Child Adolesc Psychiatry 2023; 32:675-83., challenges as distance from family members and friends 2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37., lack of privacy 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76., and adaptation to hospital routine 2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.. Exclusion from everyday life is especially difficult for school-age adolescents, hindering future life planning 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,2828. Gill F, Butler S, Pistrang N. The experience of adolescent inpatient care and the anticipated transition to the community: young people's perspectives. J Adolesc 2016; 46:57-65.,2929. Haynes C, Eivors A, Crossley J. "Living in an alternative reality": adolescents' experiences of psychiatric inpatient care. Child Adolesc Ment Health 2011; 16:150-7.,3030. Moses T. Adolescents' perspectives about brief psychiatric hospitalization: what is helpful and what is not? Psychiatr Q 2011; 82:121-37.,3434. Salamone-Violi GML, Chur-Hansen A, Winefield HR. "I don't want to be here but I feel safe": referral and admission to a child and adolescent psychiatric inpatient unit: the young person's perspective. Int J Ment Health Nurs 2015; 24:569-76.,3535. Stanton J, Thomas DR, Jarbin M, MacKay P. Self-determination theory in acute child and adolescent mental health inpatient care. A qualitative exploratory study. PLoS One 2020; 15:e0239815.. Crisis care is proposed in open and community environments, which rethink care strategies and take advantage of the transformative potential of crises 6666. Amorim MF. Atenção voltada à crise de crianças e adolescentes: noções e práticas [Masters' Thesis]. São Paulo: Universidade de São Paulo; 2020.. The effort of public authorities and health services to offer a model of mental care for children and adolescents that avoids punitive and exclusionary logic is crucial 6767. Braga CP, d'Oliveira AFPL. Motivos e mecanismos de internação de crianças e adolescentes em hospital psiquiátrico: o circuito do controle. Cad Saúde Pública 2022; 38:e00170821..
Issues about health staff and health services
During the crisis, caregivers of children and adolescents criticized the delay in initial care 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.,3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20.,6868. Radez J, Reardon T, Creswell C, Lawrence PJ, Evdoka-Burton G, Waite P. Why do children and adolescents (not) seek and access professional help for their mental health problems? A systematic review of quantitative and qualitative studies. Eur Child Adolesc Psychiatry 2021; 30:183-211. and the disorganization of mental health services 3636. Walter UM, Petr CG, Davis S. Informing best practices for children in psychiatric crises: perspectives and insights from families. Fam Soc 2006; 87:612-20.,6969. Sampaio ML, Bispo Júnior JP. Rede de Atenção Psicossocial: avaliação da estrutura e do processo de articulação do cuidado em saúde mental. Cad Saúde Pública 2021; 37:e00042620.. Moreover, they faced the inadequacy of services to the specific needs of their children 1212. Moura BR, Matsukura TS. Atenção à crise de crianças Attention to the crisis of children and adolescents: care strategies of Psychosocial Care Centers for Children and Adolescents from the perspective of managers and family members. Physis (Rio J.) 2022; 32:2-27.. The importance of health systems organizing care that promptly and effectively meets mental health needs in crises is highlighted 4848. Ministério da Saúde. Atenção psicossocial a crianças e adolescentes no SUS: tecendo redes para garantir direitos. Brasília: Ministério da Saúde; 2014.. Health professionals recognize the need to improve work processes to adequately serve and care for users and families 2727. Fu X, Yang J, Liao X, Shen Y, Ou J, Li Y, et al. Parents' and medical staff's experience of adolescents with suicide-related behaviors admitted to a general hospital in China: qualitative study. BMC Psychiatry 2021; 21:62.. On the other hand, users, whether adolescents, family members, or caregivers, expect staff to be well prepared for intervention and care 1515. Thabrew H, Mairs R, Taylor-Davies G. Young people's experiences of brief inpatient treatment for anorexia nervosa. J Paediatr Child Health 2020; 56:30-3.,7070. Gawski A, Araújo MDM, Malaquias TSM, Jeronymo DVZ, Borba KP, Silva DC, et al. Saúde mental da criança e adolescente na atenção básica: revisão integrativa da literatura. Brazilian Journal of Development 2022; 8:32421-45..
Recommendations for practice, public policies, and research
For clinical practice, it is essential to invest in interpersonal relationships during interventions. Individualized care is recommended, meeting the specific needs of each case. Rigid and invasive procedures, such as restraint, should be avoided due to potential harm. Professionals must be trained to deal with the complexities of crises, provide shared care, and promote the protagonism of users and families.
For public policies, it is crucial to invest in the qualification of professionals and in the strengthening of support and care networks. It is also recommended to invest in strategies to minimize the damage caused by hospitalization, as seen in studies. Investing in 24-hour hospitality in community mental health services for children and adolescents could be promising, as they are longitudinal healthcare services with reference staff for users and family members, and can work as part of a care network in the territory to make the return to daily life as quickly and easily as possible.
In the field of research, studies are suggested on the experiences of children and adolescents in community mental health services and on the potential and difficulties in training child and adolescent mental health teams.
According to the JBI Feasible, Appropriate, Meaningful, and Effective (FAME) scale, all of these recommendations are grade A, indicating strong evidence of benefits, quality of evidence, and consideration of users’ values and experiences 7171. Joanna Briggs Institute. JBI grades of recommendation. https://jbi.global/sites/default/files/2019-05/JBI-grades-of-recommendation_2014.pdf (accessed on 29/Nov/2022).
https://jbi.global/sites/default/files/2... .
Limitations
As a limitation, this review did not include studies about childhood or listening to children who received interventions in crises. Few studies described intervention in child and adolescent crises in community mental health services, which limited the analysis mainly to hospital experiences. A scoping review 7272. van Genk C, Roeg D, van Vugt M, van Weeghel J, Van Regenmortel T. Current insights of community mental healthcare for people with severe mental illness: a scoping review. Front Psychiatry 2023; 14:1156235. published in 2023 that provided a comprehensive overview of existing and upcoming community mental healthcare approaches concluded that less than half of the included papers are empirical studies, and a large part of the included papers were composed of descriptive or opinion papers. The authors suggested more empirical research on this subject.
Conclusion
This review found that the perceptions of mental healthcare professionals, family members, and users about children and adolescents’ mental health crisis intervention at hospitals and community mental health services could be categorized into procedures; importance of relationships during crisis intervention; positive and negative emotional responses to treatment; and perceptions of users, family members, and staff about the difficulties and strengths of child and adolescent mental health staff and services. It was possible to observe convergent perceptions about interventions in crises experienced by children and adolescents in mental health services. Professionals pointed to the need to improve the labor process and the staff itself to raise the level of care. Family members highlighted the same needs in addition to recognizing that they need to be more responsible for their children’s care. Adolescents perceived negative and positive aspects of care in different environments, also suggesting ways to improve the care they undergo.
Further research should be developed addressesing this topic in community mental health services, given that most of the studies that were part of this review were conducted in a hospital context. It is also suggested to carry out research that seeks to listen to the perceptions of children, as understanding perceptions is one of the paths towards improving care and, consequently, improving users’ experiences at this time of suffering.
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Publication Dates
- Publication in this collection
20 Dec 2024 - Date of issue
2024
History
- Received
29 Jan 2024 - Reviewed
21 June 2024 - Accepted
19 July 2024